Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses

Mary
Clinical Nurse NF Specialist

Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
Filter News
_800_600_s_c1.jpg)
Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the 2020 NHS England NF2 Meeting
Find out what went on at the NF2 National Conference and how patient feedback has played a crucial role in improving services
Read More
Meeting Megan
Read about how Megan channels her NF1 challenges and uses it as a drive for positive change!
Read More
Nurse’s Conference 2020
Read about how our specialist nurses adapted to covid19 and supported our NF community
Read More
Children’s Tumor Foundation - NF Forum 2020 Moves Online!
Find out how you can take part in CTF's 2020 online NF Forum
Read More
Pauline & Helen Boughen’s PIP Journey
Learn how Helen & her mum Pauline overcame their difficulty with getting the benefits they deserved with Julie Ann Evans help
Read More
Pipers Rocks
Read about Pipers School amazing Rocktastic fundraising efforts for Nerve Tumours UK
Read More
Your NF questions answered directly from the Top!!
Get answers to your NF questions directly from our medical advisors
Read More