Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses

Mary
Clinical Nurse NF Specialist

Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
Filter News

Specialist Neurofibromatosis Nurse - Wales
Find out more about our latest position available in Wales
Read More
Covid-19 Impact on Wellbeing in Families of Children with Rare Neurogenetic Disorders (CoIN Study)
Find out how you can get involved
Read More
Julie Ann Evans
Learn how to navigate the benefits system for people with NF & how to approach Personal Independence Payments (PIP)
Read More
Katie’s Story
Read Katie's inspirational NF Story & how she uses running to overcome her problems
Read More
#OneMoreNurse
We need your help to continue our Specialist Neurofibromatosis Support Network
Read More
NF1 Army’s incredible 10 million steps fundraiser!
read about team 10 million steps fantastic lockdown fundraising efforts
Read More
Billy & Logan’s Story
Read about how engaging in sport supports them both with NF1 related issues
Read More
The One Show Year Book in Lockdown
Jacob & Ella take part in The One Show's Nationwide Yearbook for students in secondary school
Read More
Benefit and Financial Support Matters answered by our Specialist
Find out how you can get your disability benefits and financial support questions answered
Read More