Shine A Light on Neurofibromatosis now streaming on The Disorder Channel
09 September 2020
With Its Film Fest Postponed by the Pandemic, Rare Outreach Coalition starts its own Streaming Channel "The Disorder Channel” and Nerve Tumours UK is part of it with its movie Shine A Light on Neurofibromatosis to raise awareness for those affected by the condition.
The goal of Rare Outreach Coalition is to create opportunities for education, awareness, conversations, and collaborations across multiple rare disease communities.
Rare Outreach Coalition was forced to postpone its May 18th event in New York City (Disorder: The Rare Disease Film Festival) due to COVID-19. ROC has now launched The Disorder Channel as a new platform to provide another showcase for rare disease films. It features many previously unseen rare films and original videos. The channel also includes some films intended for this year’s festival, as well as favourites from previous years. The aim is to raise awareness, find a cure and spread hope for those affected with a rare disease or a genetic disorder.
Our movie does have a global reach and attracts not only viewers that are affected but predominantly attracts those working in the medical profession. The stories of Emily Owen and the Burbridge Family support the founders and our cause to raise awareness and will educate those who are not aware of the impact to a persons live affected by the condition. Nerve Tumours UK is more than grateful to be able to be part of the platform from its beginning.
The Disorder Channel is now available to the millions of homes with a Roku or Amazon Fire TV. Just search for The Disorder Channel to add it to your device. You can also add the channel to your Roku device with our code DISORDERTV. We’ve collected films about the rare disease patient experience. Stories of hope in the face of the longest odds.
This year the Disorder Channel is one of the Partners at the Global Genes A RARE Patient Advocacy (un)Summit, you can find more details and register for the summit below.
Read about how our Shine A Light Movie made finalist at the PM Society Awards 2020
Read MoreFilter News
NTUK Dolphins at the Swim Serpentine 2019
Find out more about the incredible day for all involved at Hyde Park here:
Read MoreRotary’s Summer Evening Jazz Concert in aid of NTUK
Find out more about the amazing Jazz Concert that was hosted in aid of NTUK here:
Read MoreK-Star Wrestling in aid of NTUK
Find out more about the successful wrestling event that took place in aid of NTUK
Read More2019 NF Conference
Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF
Read MoreKate Swallow’s Fantastic Fundraiser at the Tipsy Pig
Find out more about the succesful and throughly enjoyed charity music event hosted by Kate Swallow at the Tipsy Pig
Read MoreSupport Specialist: One of Many Cases
Have a read about a specific case study detailing the kind of work our support specialists offer to those with NF
Read MoreThank You James Gamble!
James Gamble just completed an incredible fundraiser in which he has cycled a total of 980 miles for NTUK! Find out more here
Read MoreTeagan Martin’s first day at Canterbury Secondary School
Have a read about the incredible young girl who continues to defy the odds here
Read MoreKloe van der Merwe - Our NF hero as told by Mum Candice
Hear about the incredibly brave young girl as told by her Mum Candice
Read More