Shine A Light 2022 Success!
18 May 2022
17th May is World Neurofibromatosis Awareness Day
Yesterday, on Tuesday 17th May 2022, we had over 200 buildings and landmarks across the UK & the Republic of Ireland, lighting up in blue, the colour of NF, to Shine A Light on Neurofibromatosis and celebrate 40 years of Nerve Tumours UK.
The global Shine A Light campaign is now in its 8th year and this was the brightest one yet, in our joint efforts to raise awareness. Around the world, hundreds of buildings lit up. Countries taking part included:
- UK & Republic of Ireland - 204
- US - 85
- Canada - 21
- Australia - 113
- Italy - 23
- Portugal - 1
- Singapore - 6
- Spain - 39
- Switzerland 1
A big thank you to every building and landmark and every person who helped us Shine A Light!
ACC Liverpool
Tower 42, London
The Palace Armagh; Armagh Gaol; Old Town Hall, Banbridge; Craigavon Civic & Conference Centre
The Kelpies, Falkirk
County Hall, Carmarthen
British Airways i360 pod Brighton
Belfast City Hall
Centre:MK, Milton Keynes
Edinburgh Castle
Burnavon Theatre, Cookstown
Whittle Arch, Coventry
Causeway Council
Civic Headquarters, Lisburn
Falkirk Wheel
Guildhall, Portsmouth
Killinchy Non Subscribing Presbyterian Church, Balloo, Newtownards
Leeds Hospital
Ranfurly House, Dungannon
Rochester Cathedral
Spinnaker Tower, Portsmouth
Bridewell, Magherafelt
40 Years - lit up on Tower 42, London
Clacton Pier
Barrow Town Hall
Ely Cathedral
Eton College Chapel
Eton College: Theatre
Mareel Cinema & Music Venue, Shetland
Mareel Cinema & Music Venue, Shetland
Grand Theatre, Swansea
City of Derry Airport
Yvonne Arnaud Theatre, Guildford
Thanks to our NF Community for Shining a Light On NF by raising awareness, taking on our Shine A Light Challenges and helping support the 26,500 with Neurofibromatosis in the UK
Filter News
Lynne Highy joins our team of Specialist NF Advisors
Read all about the newest addition to our team.
Read More
NF Academy 2025: Georgia’s Blog
NTUK ambassador Georgia Baum shares her transformative experience of attending the NF Academy 2025 in Barcelona
Read More
University of Manchester Research: Update
An update on the NTUK-backed research done by two PhD students at the University of Manchester.
Read More
Craig’s story
Craig describes his mosaic NF2 related hearing loss, and how a cochlear implant & hearing aids have changed his life
Read More
George’s Schwannoma Story
George shares his experience of being diagnosed with a schwannoma and why he's lacing up for NF awareness.
Read More
Naomi’s Research: An Anthropological Study of NF1
Anthropologist Naomi shares her research into the different experiences of people with NF1.
Read More
JoJo’s NF1 Story
JoJo shares how her NF1 journey has affected her; how her pain and loss have become foundations of courage and resilience.
Read More
Tristan’s Story: Hope & Resilience
Discover Tristan's NF1 story: Finding home, hope & the power of sport.
Read More