Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
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Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the National NF2 CQuinn Meeting in Manchester.
Have a read about what was talked about at this year's National NF2 CQuinn Meeting in Manchester
Read More![](https://nervetumours.org.uk/images/made/images/common/BrowsealoudPage-Preview-800-x-500-px_800_600_s_c1.png)
Nerve Tumours UK adds BrowseAloud to their website
Have a read about the new software we have uploaded to our website in order to make it more accessible to everyone.
Read More![](https://nervetumours.org.uk/images/made/images/common/Will-Page-Preview-800-x-500-px_800_600_s_c1.png)
11 year old inspired to run 31 miles within 8 hours for his brother who has NF
Have a read about young Will's remarkable achievement that has been inspired by Adam Jacob's story on our website
Read More![](https://nervetumours.org.uk/images/made/images/common/SimonPage-Preview-800-x-500-px_800_600_s_c1.png)
Simon’s Story
Have a read of Simon's Story and his desire to help NF2 Bio Solutions find a cure for NF2:
Read More![](https://nervetumours.org.uk/images/made/images/common/burbsPage-Preview-800-x-500-px_800_600_s_c1.png)
Steve Brine MP helps spread awareness for Nerve Tumours UK
The Burbridge Family recently met up with MP Steve Brine to help spread awareness for NF. Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/TomPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Tom
Tom Hazell is 37, works in IT, lives in Essex with his long-term partner, he has NF2/Schwannomatosis Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/James-GPage-Preview-800-x-500-px_800_600_s_c1.png)
A Gamble Across Britain
James will be cycling the length of the country this September- that's 980 miles! Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Buckingham-palacePage-Preview-800-x-500-px_800_600_s_c1.png)
Nerve Tumours UK at Her Majesty The Queen’s Buckingham Palace Garden Party
Nerve Tumours UK attended one of Her Majesty The Queen's Summer Garden Parties. Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/DanPage-Preview-800-x-500-px_800_600_s_c1.png)
Dan’s Story
Dan wants everyone to know that NF1 comes in different forms. Have a read of his courageous story here:
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