Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
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Meet Pearl
Pearl Kelly is 22, and has multiple complex problems caused by her NF1. Here she explains her outlook on life
Read MoreMeet Joanna
Joanna is a lecturer in Mitochondrial Genetics at Newcastle University, she recently ran the London Marathon. Meet her here
Read MoreNew Research Into Appearance Altering Conditions
Maia Thornton PhD is looking for both parents and professionals who care for someone with an appearence altering condition
Read MoreAdam’s Story
Adam has NF1 yet is still one of the most active and athletic people in the UK. Read about his fascinating story here:
Read MoreLittlewood’s Charity Night
Have a read of yet another successful charity night hosted by the Littlewoods
Read MoreEmily Owen Positive Role Model (Disability) Award Nomination
Vote for our tustee Emily Owen at this year's National Diversity Awards 2019.
Read MoreResearch Outlook with Prof Gareth Evans
Have a read on some of the latest research with Prof Gareth Evans
Read MoreICAEW Worcestershire Annual Dinner and Ball Fundraiser for NTUK
The ICAEW Worcestershire Annual Dinner and Ball raised an incredible amount for us this year! Find out more here:
Read MoreWe are Family London Marathon
Have a read of the remarkable journey the White family has undergone in support of their young daughter Gaby who has NF.
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