Rarefest 2020
20 November 2020
Sign up for free
The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
Filter News
![](https://nervetumours.org.uk/images/made/images/common/PoppyPage-Preview-800-x-500-px_800_600_s_c1.png)
Polly’s Story (as told by Mum Emily)
"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all"
Read More![](https://nervetumours.org.uk/images/made/images/common/eden-baby_800_600_s_c1.jpg)
EDEN Study Progress Report
The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.
Read More![](https://nervetumours.org.uk/images/made/images/common/EllaPage-Preview-800-x-500-px_800_600_s_c1.png)
Ella’s story
Have a read of Ella's story here. An uphill battle which we know she will turn around!
Read More![](https://nervetumours.org.uk/images/made/images/common/Grace-colourPage-Preview-800-x-500-px_800_600_s_c1.png)
Grace’s Story
Have a read of Grace's story and she overcame her insecurites surrounding her NF
Read More![](https://nervetumours.org.uk/images/made/images/common/Helpful_Charities_800x500_preview_800_600_s_c1.jpg)
Helpful Charities
Find some of the other helpful charities that may be able to support you here
Read More![](https://nervetumours.org.uk/images/made/images/common/Harvey-Page-Preview-800-x-500-px_800_600_s_c1.png)
Sophia and Harvey’s story
"Despite all that, Harvie is a happy little boy who enjoys nursery and loves his favourite things"
Read More![](https://nervetumours.org.uk/images/made/images/common/Lucys-StoryPage-Preview-800-x-500-px_800_600_s_c1.png)
Lucy’s Story
"I love him, and I couldn't be without him, regardless of whether he was sick or healthy."
Read More![](https://nervetumours.org.uk/images/made/images/common/JayceePage-Preview-800-x-500-px_800_600_s_c1.png)
Jaycee’s Story
Have a read of Jaycee's incredible story and how she has overcome some major difficulties in her life.
Read More