RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
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Wass’ Everyday Battlers 10K Stratford Run
Wassim is running the 10K Stratford Run for Nerve Tumours UK. Here he explains his reasons as to why:
Read MoreMegan’s Skyfall
Megan is undertaking a sponsored skydive for NTUK as part of her travels! Find out more here
Read MoreGlen’s Half Marathon in Support of his Nephew Freddie.
Have a read about the special young boy who has inspired his uncle take on the New Forest Half Marathon
Read MoreJessica’s Amazing Fundraising Efforts
Have a read about the incredible 7 year old fundraising girl who is supporting research into NF1
Read MoreSmiling Through
Have a read about Melanie and her courageous young son Emilio (NF1) and the impact NTUK has had on their lives.
Read MoreOur 2019 Christmas Card Competition Winner!
See our Christmas Card winning illustration here
Read MoreHelen’s Story
Have a read of loving Mum Helen's Story and how she cares for her wonderful daughter Gaby (NF1)
Read MoreLooks and Life: A summary of the study
Have a read about the findings from the UWE's "Looks and Life" Study
Read MoreKate’s Story
Have a read of Kate's inspiring story including the introduction of her beautiful daughter Esme, who has NF1, into the world.
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