RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
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Nicks Triathlon in Support of his daughter Eilidh
Find out more about Nick's Triathlon and his daughter's experiences with NF1 here:
Read MoreTom GK- Hearing Loss: The Musical
Find out more about the musical and how you can secure your ticket here
Read MoreNerve Tumours UK joins the “Embracing Complexity” Coalition
Find out more about the coalition we have decided to join
Read MoreResearching NF1
Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.
Read MoreMegan’s Journey
Megan talks about her experiences of being a student with NF and what she took away from the NF conference in San Fransico
Read MoreAldo goes to Primary School
Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here
Read MoreEva’s Races
Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:
Read MoreCarl’s Story in memory of his sister who had NF2
Carl recently hosted his own wrestling event in memory of his late sister, find out more on his story here:
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