RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
Filter News
Lily: A little girl with a contagious smile
Learn all about Lily's NF1 diagnosis and how that led to incredible efforts to raise awareness and fundraise.
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A New Collaboration: Ian Duggan British GT
Ian is racing in the British GT Championship, and will be sporting the NTUK Logo on his racing car and driving suit.
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Lilly’s Story: Growing Up With NF1
In 2019, Lilly and her family featured in our ‘Shine a Light on Neurofibromatosis’ short film. Find out how she's getting on.
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Improving the delivery of Genetic Results Survey
Survey: How did you receive your genetic results? Could we do it better?
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Sonny’s NF1 story
Sonny, 3 years old, faces daily challenges but shows incredible strength, determination, and resilience. Read his story.
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Great North Run 2026
Read more about this iconic half-marathon, and find out how to apply for 2027.
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Manchester University NF1 MEK Inhibitors Research
Research: NF1 MEK Inhibitors and Learning
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