RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
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Nicole’s NF1 story & skydive
Nicole shares her NF1 journey and her motivation to inspire children with disabilities to achieve whatever they want to do
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Sarah’s NF1 story & Langmead fundraising
Sarah describes her daughter Hannah's NF1 journey and organising a corporate charity day fundraiser at Langmead Herbs
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Study - Resilient Youth with NF
Adolescents with NF (12-17 years old) are wanted for an Online Harvard research project
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CAR Relationships study
CAR survey: support materials for adults with appearance-affecting conditions, focussed on intimacy & romantic relationships
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Glasgow Comedy Night
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Newcastle Comedy Night
The Stand Comedy Club in Newcastle held a great night of fun and laughter
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Nerve Tumours UK Lottery
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Manchester Comedy Night
Manchester's Frog & Bucket Comedy Club hosted the 2nd date on the NTUK 2022 comedy circuit
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Call for evidence for new 10-year plan to improve mental health
The government has committed to develop a new cross-government, 10-year plan for mental health and wellbeing
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