RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
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University of Manchester Research
Read about the latest PHD research, involving Nerve Tumours UK, at the University of Manchester
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Find out more about the study and how you can participate here
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The new name for Neurofibromatosis Type 2 is NF2-related-Schwannomatosis (NF2)
Read MoreJensen’s NF1 story
Stuart describes Jensen's first days post birth, subsequent diagnosis of NF1 plus his & wife Claire's hopes for his future
Read MoreTSL’s Charity of the Year
Specialist Nurse Tracey Kenyon launches TSL’s corporate funding to introduce NTUK & welcome guest of honour, 2 year old Evie
Read MoreOnline – Accessibility – We have the tools to help!
The NTUK website has accessibility tools to give you easier access to online & digital content
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Read MoreResources Survey: Initial Diagnosis 2023
We received many responses to our survey asking what would you have found helpful after your initial diagnosis
Read MoreBecome a Trustee
Nerve Tumours UK are looking for at least two new trustees to join the Board. Find out more
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