RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/carers-rights-dayPage-Preview-800-x-500-px_800_600_s_c1.png)
Carers Rights Day. Diane’s Story
Find out more about Diane's life as a carer and how more should be done for unpaid carers in the UK
Read More![](https://nervetumours.org.uk/images/made/images/common/NF1-PN-HRQoL-Survey_MainPage_preview_800_600_s_c1.png)
NF1 PN Impact on Patients’ and Caregivers’ Lives
If you have NF1 with plexiform neurofibromas or you care for someone with NF1 PN help shape future healthcare support
Read More![](https://nervetumours.org.uk/images/made/images/common/Night_time_runs-_preview_800_600_s_c1.jpg)
24 Hour Marathon – Three Brothers Running for the Fourth
Toby, James & Alex take on an epic 24 hour marathon race to commemorate their brother Tristan
Read More![](https://nervetumours.org.uk/images/made/images/common/Parent_support_research_advert_370x280.png_800_600_s_c1.jpg)
Centre for Appearance Research NF Survey - Results
Find out how you can take part in CAR's online survey about NF parenting and caring experiences.
Read More![](https://nervetumours.org.uk/images/made/images/common/EC_COVID-19_survey_1_preview_800_600_s_c1.jpg)
Share your Covid-19 Story - Survey Results
Embracing Complexity share the results of their impact of Covid19 survey, find out more
Read More![](https://nervetumours.org.uk/images/made/images/common/Hour_of_Power_Fitness_Class__Gavin_370x280_800_600_s_c1.jpg)
Hour of Power – Love Yourself Valentine’s Day workout for NF
Thanks to all those that got their hearts pumping this Valentine's Day for our NF community!
Read More![](https://nervetumours.org.uk/images/made/images/common/Rare_Disease_Festival_Website_preview_370x280_800_600_s_c1.jpg)
Rare Disease Day 2021 and Rare Reach Festival
Find out how you can get involved in the first ever Rare Reach Festival and make sure the Rare communities voice is heard!
Read More