RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Christian_-_Ellie_Davis_Garden_Challenge_4_preview_800_600_s_c1.jpg)
Christian’s Story
Christian's Mum, Ellie, share's their journey with NF & why they decided to get involved with this year's Garden Challenge!
Read More![](https://nervetumours.org.uk/images/made/images/common/Tate_Shine_A_Light_Marathon_-_Finished_preview_800_600_s_c1.jpg)
Tate’s Shine A Light Marathon
Tate's mum shares his incredible journey with NF & why he took part in our Shine A Light Marathon to help others like him
Read More![](https://nervetumours.org.uk/images/made/images/common/Euro_NF_Conf_Rotterdam_Dec_2020_preview_800_600_s_c1.jpg)
Virtual Medical Meetings
Conferences in 2020 went online meaning the whole nursing team and key members of the head office were able to attend
Read More![](https://nervetumours.org.uk/images/made/images/common/Connection_Coalition_370x280_800_600_s_c1.jpg)
Connection Coalition
NTUK joined the Connection Coalition with the aim of working together to build strong relationships & connected communities
Read More![](https://nervetumours.org.uk/images/made/images/common/Rare_Disease_Festival_Website_preview_370x280_800_600_s_c1.jpg)
Rare Disease Day 2021
Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021
Read More![](https://nervetumours.org.uk/images/made/images/common/NF1_Mummy_image_1_370x280_800_600_s_c1.jpg)
Kate, NF Mummy Community & Support
Kate tells us why she started the NF1 Mummy community group online
Read More![](https://nervetumours.org.uk/images/made/images/common/Alex_2-edit_preview_image_800_600_s_c1.jpg)
Alex’s story - Support in the Workplace
Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment
Read More![](https://nervetumours.org.uk/images/made/images/common/adam-whitlock-I9j8Rk-JYFM-unsplash_preview_800_600_s_c1.jpg)
A Colourful 5K Challenge
Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.
Read More![](https://nervetumours.org.uk/images/made/images/common/Courtney_Garden_Marathon_World_NF_Day_2_preview_800_600_s_c1.jpg)
Our NF community share why they are taking on the World NF Day: 2.6 mile Garden Challenge!
Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!
Read More