RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
Filter News
Become an NF Patient Representative
Help fight to cure all types of NF by taking part in the latest clinical trials, find out how you can get involved.
Read MoreDrugStar Pearl Kelly
Find out how you can join Pearl and donate to Nerve Tumours UK simply by taking your prescribed medication
Read MoreFirst Specialist Neurofibromatosis (NF) Nurse for Wales
We're delighted to announce the first ever Specialist NF Nurse for Wales, find out more
Read More2020 A Review
2020 was hard for everyone but our NF community is stronger & more resilient than ever. Read our reflections on 2020
Read MoreGeena’s Story
James Harkness talks about his late mother Geena Andrews & what Nerve Tumours UK meant to her.
Read MoreXmas Party Superheroes
Had your Xmas party cancelled? Find out how you can save the day & become instant #XmasPartyHeroes
Read MoreLee’s Santa Dash
Check out Lee's Festive Santa Dash for NF and see how you can get involved
Read MoreThinking Forward to 2021 - A Message from our Charity Director
A message from Karen our Charity Director on looking forward to the year ahead
Read More