Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News

Pipers Rocks
Read about Pipers School amazing Rocktastic fundraising efforts for Nerve Tumours UK
Read More
Your NF questions answered directly from the Top!!
Get answers to your NF questions directly from our medical advisors
Read More
Planning for a Family - Elena & Nicks Story
Elena describes their journey using Preimplantation Genetic Diagnosis (PGD) to prevent passing on NF1 to their baby.
Read More_Clinical_Lead_–_NF2_MidlandsEast370x280_800_600_s_c1.jpg)
Statement by Juliette Buttimore Clinical Lead Nurse– NF2 Midlands/East
A statement on coronavirus by Juliette Buttimore Lead Specialist NF2 Nurse at Addenbrooke's Hospital in Cambridge
Read More
Stewart Lee Member of the Board of Trustees who has NF2 on Lockdown Life
Let's celebrate World NF2 Day, because we live our lives with such a hard condition; let's focus on how amazing we all are!
Read More
Tom GK in Lockdown
NF2 can be a lonely business; but now there are 60-odd million people in Britain who have all learned how precious & fragile
Read More