Nurse’s Conference 2019
11 October 2019
Nurse's Conference 2019
This week we had our yearly specialist advisor meeting with members of the Nerve Tumours UK office and board in London. In attendance were Carolyn Smith, Ruth Drimer, Samantha Gaden, Helen Tomkins, Kirsty Bready, Rachel Jones and Melanie Murrell.
The aim of the meeting was to exchange and update our specialist NF nurses on what is happening in the field, what areas are geographically covered and what new projects are being initiated e.g. iNForm for schools.
This meeting helps us as a charity better understand how we can support our specialist nurses and those affected by NF. We are extremely grateful for the support that our Support Specialists are providing to our community day in day out.
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Filter News
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Insights into the work of our support specialists from Mel Murrell
Meet one of our Support Specialists Mel Murrell and read about her impressions on her first year in the role
Read More![](https://nervetumours.org.uk/images/made/images/common/travelsPage-Preview-800-x-500-px_800_600_s_c1.png)
World At Her Feet
Christina has wrtiten a blog partly about living with NF1 and partly about her travels. Find it here:
Read More![](https://nervetumours.org.uk/images/made/images/common/AroojPage-Preview-800-x-500-px_800_600_s_c1.png)
Arooj: The Fashion Blogger with NF
Arooj Aftab, 22, is an influencer, with NF1, who is known for her baggy fashion style
Read More![](https://nervetumours.org.uk/images/made/images/common/ecclesiasticalPage-Preview-800-x-500-px_800_600_s_c1.png)
Nerve Tumours UK wins Movement for Good award
Find out more about the award and why we received it here:
Read More![](https://nervetumours.org.uk/images/made/images/common/DaynaPage-Preview-800-x-500-px_800_600_s_c1.png)
Dayna’s Story
Despite suffering many set backs as a result of NF, Dayna still maintains all her ambitions in life. Read her story here:
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Prudential Ride 2019
Thank you so much to all our Prudential Ride 2019 riders! Find out more, including some fantastic photos, here:
Read More![](https://nervetumours.org.uk/images/made/images/common/expertscapePage-Preview-800-x-500-px_800_600_s_c1.png)
Expertise in Neurofibromatosis: Within Europe
Find out more about the spread of NF experts across Europe:
Read More![](https://nervetumours.org.uk/images/made/images/common/nationwide-childrensPage-Preview-800-x-500-px_800_600_s_c1.png)
New Gene Therapy at a World-Renowned Research Insitute
Find out more about the new gener therapy that both NTUK and NF2 Biosolutions are strongly supporting
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