Nurse’s Conference 2019
11 October 2019
Nurse's Conference 2019
This week we had our yearly specialist advisor meeting with members of the Nerve Tumours UK office and board in London. In attendance were Carolyn Smith, Ruth Drimer, Samantha Gaden, Helen Tomkins, Kirsty Bready, Rachel Jones and Melanie Murrell.
The aim of the meeting was to exchange and update our specialist NF nurses on what is happening in the field, what areas are geographically covered and what new projects are being initiated e.g. iNForm for schools.
This meeting helps us as a charity better understand how we can support our specialist nurses and those affected by NF. We are extremely grateful for the support that our Support Specialists are providing to our community day in day out.
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Filter News
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Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
Find out more about the technology being developed and how it can be used to prevent/decline vision loss in NF1 patients
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK-dolphinsPage-Preview-800-x-500-px_800_600_s_c1.png)
Nerve Tumours UK Dolphins Family and Friends
Our new fundraising hub has it's first fundraiser! Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/ruby-sleepoverPage-Preview-800-x-500-px_800_600_s_c1.png)
Ruby Galloway (NF1) is thrown an incredible sleepover!
Ruby Galloway receives her own incredible sleepover after being nominated by nearly half of Plymouth! Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/jonnyPage-Preview-800-x-500-px_800_600_s_c1.png)
Jonny’s Story
Jonny has chosen to open up and share his incredibly brave battle with Cancer over the past year, find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/james_2__800_600_s_c1.jpg)
James on Tour
James Wiggin is taking on the Tour de France on behalf of Nerve Tumours UK – or at least a part of it.
Read MoreNerve Tumours UK Specialist Neurofibromatosis Nurses attend the National NF1 Meeting in Manchester
Have a read what was talked about at this year's National NF1 Meeting in Manchester
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Let’s Go Regional/ Let’s Go Outside
Read about the website that offers new exciting opportunities to help you find a fundraiser/event that is most suited to you
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Meet Harley
Have a read about the amazing 7 year old boy with NF1 and his fundraising family
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Funny Peculiar
Peculiar Productions has chosen to donate all their proceedings to NTUK this year! Find out more:
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