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Eva’s Races

08 October 2019

Eva's Races

Eva to date has run 3 races in aid of Nerve Tumours UK, all in support of her wonderful little niece who was diagnosed with NF1 last year. She has so far ran in and completed the Great North Run, the London ASICS 10k and the Queen Elizabeth Olympic Park 10K. 

Here Eva tells us a little bit about why she decided to start running for Nerve Tumours UK:

"I started fundraising for Nerve Tumours UK because my little niece Mira was diagnosed with NF1 last year. I knew very little about the condition so started doing some research and came across the charity. I feel incredibly honoured and proud to run my races for Nerve Tumours UK and to be able to raise funds for the charity and awareness of Neurofibromatosis."

"I feel incredibly honoured and proud to run my races for Nerve Tumours UK and to be able to raise funds for the charity and awareness of Neurofibromatosis."

– Eva

Eva's niece Mira

If you, like Eva, would like to run in support of Nerve Tumours UK in order to help spread awareness for NF up and down the country then make sure to visit our challenge hub below to find your perfect event today!

Challenge Hub

Everyone at Nerve Tumours UK would like to thank Eva for her incredible efforts over the past year and wish her the best of luck in all her future races 😊

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Launch of Nerve Tumours UK

Following a major strategic review, the Neuro Foundation charity is now known as Nerve Tumours UK.

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NF1 research award first for UK consultant

Dr Shruti Garg is the first non-US resident to receive NF1 $555,000 research award.

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Polly’s Story (as told by Mum Emily)

"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all"

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EDEN Study Progress Report

The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.

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Ella’s story

Have a read of Ella's story here. An uphill battle which we know she will turn around!

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Grace’s Story

Have a read of Grace's story and she overcame her insecurites surrounding her NF

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Helpful Charities

Find some of the other helpful charities that may be able to support you here

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Sophia and Harvey’s story

"Despite all that, Harvie is a happy little boy who enjoys nursery and loves his favourite things"

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Lucy’s Story

"I love him, and I couldn't be without him, regardless of whether he was sick or healthy."

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

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Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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