Dexter’s NF Documentary Project
25 May 2021
Dexter, who has Neurofibromatosis Type 1, is currently studying Film and Media at Ravensbourne University, London. Dexter is the first person in his family with NF, with neither of his parents having it. First diagnosed as a child he spent a lot of time growing up being self-conscious about his NF but has since learned that; we are all different and we should show our differences proudly.
Dexter's documentary project called on members of the NF community to share their daily experiences of living with Neurofibromatosis. Living with the condition himself, he wanted to focus on exactly how people are affected, getting people to open up about the condition so that people can understand the impacts in greater detail and on a more personal level. The documentary is now live and can be viewed below.
The documentary’s theme is ‘Identity & Disability. Diving deep into the truths of disability and the perception of disabilities, as at times disabilities can be generalised as well as misunderstood.
– Dexter"I would also like the focus to steer towards what it really means to have NF, as each person with NF will have a different story. My target audience is teens to young adults with NF, as they may be more self-conscious about who they are as a person. This documentary would hopefully allow them to feel more comfortable in their skin. My target audience will widen to the general public, as especially now during the lockdown, more people are engaging with unknown subjects. This documentary will hopefully be interesting to those viewers who are not only interested in NF but also want to understand and learn more about a different topic, such as Neurofibromatosis."
NTUK supports Dexter in this project as part of our Shine A Light Campaign 2021 "Support the NF Community Make Their Voices Heard in a Changing World"
Please like, comment, and share Dexter’s insightful and honest work with other members of our NF community.
Nerve Tumours UK is not responsible for any data collection or content of the project.
Filter News
Carers Rights Day. Diane’s Story
Find out more about Diane's life as a carer and how more should be done for unpaid carers in the UK
Read MoreNF1 PN Impact on Patients’ and Caregivers’ Lives
If you have NF1 with plexiform neurofibromas or you care for someone with NF1 PN help shape future healthcare support
Read More24 Hour Marathon – Three Brothers Running for the Fourth
Toby, James & Alex take on an epic 24 hour marathon race to commemorate their brother Tristan
Read MoreCentre for Appearance Research NF Survey - Results
Find out how you can take part in CAR's online survey about NF parenting and caring experiences.
Read MoreShare your Covid-19 Story - Survey Results
Embracing Complexity share the results of their impact of Covid19 survey, find out more
Read MoreHour of Power – Love Yourself Valentine’s Day workout for NF
Thanks to all those that got their hearts pumping this Valentine's Day for our NF community!
Read MoreRare Disease Day 2021 and Rare Reach Festival
Find out how you can get involved in the first ever Rare Reach Festival and make sure the Rare communities voice is heard!
Read More