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Nerve Tumours UK Challenge Yourself Week

04 June 2021

"A Marathon is a race with yourself, a struggle to reach your personal goal. People with Neurofibromatosis are engaged in a constant struggle to overcome challenges that come with the disease."

– Joanna, who has NF1 & is constant runner & supporter of NTUK and now planning to set up Marathonmania in October this year.

Run, swim or slide and challenge yourself. With summer right around the corner & lockdown easing around the country, we’re calling on you, our fantastic supporters to get out there and challenge yourself!

Help transform the lives of people affected by Neurofibromatosis and take on one of our many incredible events. Secure your spot in one of the world’s most iconic running races – The London Marathon, back after two and a half! or join 50,000 other runners from around the world taking part virtually!

Out of training since lockdown? The Asics 10k might be your distance of choice or go half on the marathon and sign up for the iconic Great North Run, the UK's biggest half marathon. 

You can go virtual and split the 26.5 miles over 24 hours by signing up for the Virtual London Marathon, same day, same medal and same distance. Sign up alone or with a group of friends or family by running in your close proximity.

We have various options for challenge events - you can choose from swimming, running and cycling to name a few, across the country or even abroad on your challenge holiday. 

Something for your family during the summer holidays? Slide through parks and gardens by joining "Esme's Summer of Slides"

After a year and a half with major fundraising events cancelled, we need your help now more than ever, to continue and expand our services like our Specialist NF Nurses, National Helpline, Online communities and more. Whatever challenge you choose, you will be helping our NF community.

London Marathon

Take on the world's most iconic race

Sign up

Great North Run

My go to motivation every day is “Always believe you can!” That’s why I ran The Great North Run for Nerve Tumours UK - Courtney who has NF1, Runner and NTUK Supporter

Sign up

Asics 10k

“One step at a time for Nerve Tumours UK” – Salma Fundraiser and NTUK Advocate

Sign up

Swim Serpentine

"If you believe in something, you can achieve anything you set your mind too" - Kian, who has NF2, International Para-Swimmer, Daventry Dolphins Swimming Club and NTUK Blogger

Sign up

Choose your Local Challenge

"Friends, colleagues & coaches had never heard of NF. I want to complete the challenge as fast as possible...it will be a good achievement.”- Andrew who has NF1, Football Coach & Volunteer at Plymouth Argyle FC

Sign up

Slide into Summer

“NF1 Mummy talks about how people assume that conditions, like NF, mean you can’t cope or have difficulties having a normal life. In fact, sometimes people with a condition cope better when it comes to overcoming challenges” -Kate, Teacher, NF1 Mummy

Sign up

Virtual London Marathon

“Why I run the London Marathon... I hope one day there’ll be a cure for NF as it affects someone I care about, so if running a marathon helps raise money, it’s the least I can do.” – Adrian Spiderman and long-time NTUK supporter

Sign up

Do you want to talk to our fundraising team?

Sometimes we just have questions! We understand. Get in touch about the London Marathon, or any other event for that matter at fundraising@nervetumours.org.uk or call 020 8439 1234 and ask for Challenge Events Fundraising. 

Did you register for any of our challenges?     

•    Claim your free Nerve Tumours UK Running Vest & T-Shirt
•    Get fit & fundraise to make a difference to the lives of people living with Neurofibromatosis (NF)

 

When committing to events for Nerve Tumours UK please follow governmental Covid 19 guidance. Only commit to physical challenges that you are capable of, and in case of any underlying conditions, discuss with your GP or Specialist. Nerve Tumours UK cannot be held responsible for any accidents or damages that occur throughout the training commitment or the challenge itself. 

Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome

Prof. Dr. Katharina Wimmer, Medical University of Innsbruck

Masterclasses in NF: Rare NF1-Associated Tumors in Adults - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: Rare NF1-Associated Tumors in Adults

Eric Legius, MD, PhD, University Hospital Leuven

Prof. Ellen Denayer, University Hospital Leuven

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis

Simon Freeman, MPhil FRCS, Manchester Royal Infirmary and Salford Royal Hospital

Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

Masterclasses in NF: NF1 Dermatological Manifestations

Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

Masterclasses in NF: Breast Cancer in NF1

Gareth Evans, MD, University of Manchester, UK

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis

David Pang, MD, ChB. Guys and St Thomas' Hospital NHS Trust, London

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches

Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis

Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

NF2 Working Together: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

Masterclasses in NF: Surgery in NF2

Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches - Shruti Garg, Andre Rietman

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches

Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis - Susie Henley, Thomas Pletschko & Verena Rosenmayr

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis

Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

Masterclasses in NF: NF1 Pediatric Management

Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond - Amedeo Azizi

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond

Amedeo Azizi, MD, PhD, Head of the Paediatric Neurofibromatosis Program and Paediatric Neuro-Oncology Program, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Orthopedic Manifestations - Eric Legius and Christophe Glorion

Masterclasses in NF: NF1 Orthopedic Manifestations

Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK

Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas - Pierre Wolkenstein and Sirkku Peltonen

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas

Pierre Wolkenstein, MD, PhD. Hopital Henri-Mondor, Paris, France. Head of the Department of Dermatology

Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

BPNA Keynote Lecture - Prof Rosalie Ferner - Neurofibromatosis 1 in the 21st Century

‘Neurofibromatosis 1 in the 21st Century’

Keynote Lecture at the 48th British Paediatric Neurology Association Annual Scientific Meeting on 21st January 2022

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK