Dexter’s NF Documentary Project
25 May 2021
Dexter, who has Neurofibromatosis Type 1, is currently studying Film and Media at Ravensbourne University, London. Dexter is the first person in his family with NF, with neither of his parents having it. First diagnosed as a child he spent a lot of time growing up being self-conscious about his NF but has since learned that; we are all different and we should show our differences proudly.
Dexter's documentary project called on members of the NF community to share their daily experiences of living with Neurofibromatosis. Living with the condition himself, he wanted to focus on exactly how people are affected, getting people to open up about the condition so that people can understand the impacts in greater detail and on a more personal level. The documentary is now live and can be viewed below.
The documentary’s theme is ‘Identity & Disability. Diving deep into the truths of disability and the perception of disabilities, as at times disabilities can be generalised as well as misunderstood.
– Dexter"I would also like the focus to steer towards what it really means to have NF, as each person with NF will have a different story. My target audience is teens to young adults with NF, as they may be more self-conscious about who they are as a person. This documentary would hopefully allow them to feel more comfortable in their skin. My target audience will widen to the general public, as especially now during the lockdown, more people are engaging with unknown subjects. This documentary will hopefully be interesting to those viewers who are not only interested in NF but also want to understand and learn more about a different topic, such as Neurofibromatosis."
NTUK supports Dexter in this project as part of our Shine A Light Campaign 2021 "Support the NF Community Make Their Voices Heard in a Changing World"
Please like, comment, and share Dexter’s insightful and honest work with other members of our NF community.
Nerve Tumours UK is not responsible for any data collection or content of the project.
Filter News

Hour of Power – Love Yourself Valentine’s Day workout for NF
Thanks to all those that got their hearts pumping this Valentine's Day for our NF community!
Read More
Rare Disease Day 2021 and Rare Reach Festival
Find out how you can get involved in the first ever Rare Reach Festival and make sure the Rare communities voice is heard!
Read More
NF Said
Daisy takes on a 38-mile running challenge for her sister Millie, 1 mile a day for every person diagnosed with NF2 a year
Read More
Love Yourself - Hour of Power in Support of the NF community
Get your sweat on and spread the love this Valentine's day for our NF community!
Read More
Pat’s NF Fundraiser Walk
Read all about Patrick's incredible fundraising efforts to help others affected by NF!
Read More
Laura’s Marathon effort!
Laura beats our 26.5 mile challenge and takes it to the next level - matching miles with donations, find out what she's up to
Read More
Research call: Does neurofibromatosis affect how you feel about your body?
Find out how you can improve self-help methods for people living with neurofibromatosis
Read More
Stitched up by Celia
Get inspired by Celia's creative online haberdashery shop for Nerve Tumours UK!
Read More
NF1 with Plexiform Neurofibromas Study: information for patients and carers
Find out how you can help shape the future of NF1 healthcare
Read More