Christmas Message from the Nerve Tumours UK team
13 December 2023
Dear Friends & Supporters,
I hope you are all keeping well, and looking forward to the Christmas festivities.
It has been another busy year for the charity, one in which we were sad to say goodbye to some members of the team, but also one in which we welcomed some new faces, and we were especially delighted to introduce a brand new post. And, we hope to be able to continue growing the team in 2024. As I have always stressed, the core function of the charity remains the funding of the network of regional nurses.
We have been working on expanding our website over the last year. After launching the GP’s App, we have now introduced a medical hub for allied healthcare professionals, and we are in the process of launching a Progressive Web App, so all of our information will be readily available at your fingertips. The App will officially be launched in the new year, followed by the integration of a ChatBot.
We have also run the second phase of our national awareness campaign across rail hubs, in May & November this year, accompanied by an online advertising campaign, and I have been delighted by the feedback from the NF community, both patients and healthcare professionals, and from the wider general public.
We introduced a week in the summer to raise awareness of NF2, as we feel it sometimes gets lost during the month of May, and we were delighted to be supported by the two national NF2 charities, NF2 Biosolutions UK & Europe and Can You Hear Us, promoting this event.
Once again, a huge thank you goes out to all of our fundraisers and donors, who have helped to fund our services over the past year. And also to the teams from St. Mary’s in Manchester, Guys & St. Thomas’ in London and the Specialist NF2 Service based at Addenbrooke's Hospital in Cambridge. We hugely appreciate their continued collaboration and support for the charity.
Please remember that we are here to help you, either with medical questions directed to the helpline, or any other question that the head office team can help to sort. No question is ever irrelevant, so do not hesitate in asking.
On behalf of the Trustees, the Specialist Nurses & Advisors, and the head office team here at Nerve Tumours UK, may I take this opportunity to wish you all a “Very Happy Christmas and New Year!”
With my very best wishes,
Karen
Filter News
_370x280_800_600_s_c1.png)
Living with Neurofibromatosis Type 1: An Anthropological Study
Get involved and share your story to help increase cross-cultural understanding and awareness of NF1
Read More
Nimo’s NF1 Story
Read Nimo's incredible journey of coming to terms living with NF1 & how Nerve Tumours UK has changed her life for the better
Read More
Georgia’s Schwannoma Story
Read Georgia's inspirational Schwannoma story and how she had to fight for her diagnosis
Read More
Voices of Visible Difference #YoureNotAlone Men’s Campaign
Two-thirds of men with visible difference are affected in their day to day life. Read more
Read More
Childhood Neurological Conditions Survey
Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis
Read More
We’re Here for You, Our NF Community.
A big thank you from Karen our Charity Director - your support has been amazing!
Read More
Global Genes LIVE!
Join Global Genes September 15-25, 2020 at Global Genes LIVE! A RARE Patient Advocacy (un)Summit.
Read More
Shine A Light on Neurofibromatosis now streaming on The Disorder Channel
Find out how we are bringing NF Awareness to people's homes
Read More