Christmas Message from the Nerve Tumours UK team
13 December 2023
Dear Friends & Supporters,
I hope you are all keeping well, and looking forward to the Christmas festivities.
It has been another busy year for the charity, one in which we were sad to say goodbye to some members of the team, but also one in which we welcomed some new faces, and we were especially delighted to introduce a brand new post. And, we hope to be able to continue growing the team in 2024. As I have always stressed, the core function of the charity remains the funding of the network of regional nurses.
We have been working on expanding our website over the last year. After launching the GP’s App, we have now introduced a medical hub for allied healthcare professionals, and we are in the process of launching a Progressive Web App, so all of our information will be readily available at your fingertips. The App will officially be launched in the new year, followed by the integration of a ChatBot.
We have also run the second phase of our national awareness campaign across rail hubs, in May & November this year, accompanied by an online advertising campaign, and I have been delighted by the feedback from the NF community, both patients and healthcare professionals, and from the wider general public.
We introduced a week in the summer to raise awareness of NF2, as we feel it sometimes gets lost during the month of May, and we were delighted to be supported by the two national NF2 charities, NF2 Biosolutions UK & Europe and Can You Hear Us, promoting this event.
Once again, a huge thank you goes out to all of our fundraisers and donors, who have helped to fund our services over the past year. And also to the teams from St. Mary’s in Manchester, Guys & St. Thomas’ in London and the Specialist NF2 Service based at Addenbrooke's Hospital in Cambridge. We hugely appreciate their continued collaboration and support for the charity.
Please remember that we are here to help you, either with medical questions directed to the helpline, or any other question that the head office team can help to sort. No question is ever irrelevant, so do not hesitate in asking.
On behalf of the Trustees, the Specialist Nurses & Advisors, and the head office team here at Nerve Tumours UK, may I take this opportunity to wish you all a “Very Happy Christmas and New Year!”
With my very best wishes,
Karen
Filter News
Centre for Appearance Research (CAR) and The VTCT Foundation Virtual Showcase 28th July 2020
Get the latest updates on the Centre for Appearance Research's work into helping people with Visible Difference
Read MoreSpecialist Neurofibromatosis Nurse - Wales
Find out more about our latest position available in Wales
Read MoreCovid-19 Impact on Wellbeing in Families of Children with Rare Neurogenetic Disorders (CoIN Study)
Find out how you can get involved
Read MoreJulie Ann Evans
Learn how to navigate the benefits system for people with NF & how to approach Personal Independence Payments (PIP)
Read MoreKatie’s Story
Read Katie's inspirational NF Story & how she uses running to overcome her problems
Read More#OneMoreNurse
We need your help to continue our Specialist Neurofibromatosis Support Network
Read MoreNF1 Army’s incredible 10 million steps fundraiser!
read about team 10 million steps fantastic lockdown fundraising efforts
Read MoreBilly & Logan’s Story
Read about how engaging in sport supports them both with NF1 related issues
Read MoreThe One Show Year Book in Lockdown
Jacob & Ella take part in The One Show's Nationwide Yearbook for students in secondary school
Read More