Children’s Tumor Foundation - NF Forum 2020 Moves Online!
19 June 2020
The Children's Tumor Foundation, in collaboration with NYU Langone Health, will be hosting its 2020 NF Forum online this year – responding to the coronavirus pandemic & to help protect the health of patients, families, caregivers and speakers.
This will be the first time ever that the forum is hosted online via zoom across four days this summer: June 25th, July 16th, August 13th, and September 17th. Presenting a unique opportunity for people around the world with Neurofibromatosis to tune in and take part!
The forum is a safe place for families and patients to learn more about Neurofibromatosis from experts around the world, covering the most up to date information on NF including; how to manage the symptoms of NF, information about clinical trials and updates on treatment strategies.
The NF forum also offers those who are living with Neurofibromatosis and their families to; connect, support and learn from each other whilst attending seminars on relevant topics & discussions on NF.
Find out how you can get involved in the events below:
(Note that all live events will take place at 12pm GMT - further info and insights will be available after the events)
June 25th: Poster Session
An interactive Q&A with the creators of some of the most exciting posters from this year’s virtual NF Conference. Clinical poster session moderated by Bruce Korf, MD, PhD + Science poster session moderated by Verena Staedtke, MD, PhD.
Register Here
July 16th: Case Conference
A panel of expert clinicians will discuss two unique medical cases that address various medical complications seen in NF1.
Register Here
August 13th: Clinical Research
Hear about where we have been and where we are going in NF1 research; we will also discuss results of recent trials.
Register Here
September 17th: The Impact of NF on Relationships, Learning, and School
Discussion of how NF1 impacts education (IEPs, learning disabilities, social-emotional issues).
Register Here
Filter News
Shine a Light 2020 Success!
Check out some amazing blue buildings that took part in our Shine a Light On Neurofibromatosis 2020 campaign
Read More
Sarah’s Story as told by her Father Clemence
Read more about Sarah's story and her Shining a Light on NF from home for World NF Awareness Day!
Read More
Statement by Helen Tomkins our Specialist Neurofibromatosis Nurse UK
A statement on coronavirus by Helen Tomkins specialist Neurofibromatosis nurse in Devon & Cornwall
Read More
Courtney’s Story
Read more about Courtney's NF Story and how she overcomes her difficulties
Read More
No Laughing Matter
Tom is a former journalist, here he describes his journey from music journalism to comedy, & what his NF2 has to do with it
Read More
Shine A Light on Neurofibromatosis 2020
Find out what we're up to for our Shine A Light campaign this year!
Read More
Statement by Michael Fry our Chair of the Board of Trustees
The impact of the corona virus on the charity sector and Nerve Tumours UK's continued support to those affected by NF
Read More
NF1, Plexiform Neurofibromas Market Research Study
Find out more about an NF1, Plexiform Neurofibromas market research survey
Read More
Statement by Rachel Jones & Rebecca Rennison our Specialist Neurofibromatosis Nurses UK
A statement on coronavirus by Rachel Jones & Rebecca Rennison specialist Neurofibromatosis nurses in the North East & Cumbria
Read More