Children’s Tumor Foundation - NF Forum 2020 Moves Online!
19 June 2020
The Children's Tumor Foundation, in collaboration with NYU Langone Health, will be hosting its 2020 NF Forum online this year – responding to the coronavirus pandemic & to help protect the health of patients, families, caregivers and speakers.
This will be the first time ever that the forum is hosted online via zoom across four days this summer: June 25th, July 16th, August 13th, and September 17th. Presenting a unique opportunity for people around the world with Neurofibromatosis to tune in and take part!
The forum is a safe place for families and patients to learn more about Neurofibromatosis from experts around the world, covering the most up to date information on NF including; how to manage the symptoms of NF, information about clinical trials and updates on treatment strategies.
The NF forum also offers those who are living with Neurofibromatosis and their families to; connect, support and learn from each other whilst attending seminars on relevant topics & discussions on NF.
Find out how you can get involved in the events below:
(Note that all live events will take place at 12pm GMT - further info and insights will be available after the events)
June 25th: Poster Session
An interactive Q&A with the creators of some of the most exciting posters from this year’s virtual NF Conference. Clinical poster session moderated by Bruce Korf, MD, PhD + Science poster session moderated by Verena Staedtke, MD, PhD.
Register Here
July 16th: Case Conference
A panel of expert clinicians will discuss two unique medical cases that address various medical complications seen in NF1.
Register Here
August 13th: Clinical Research
Hear about where we have been and where we are going in NF1 research; we will also discuss results of recent trials.
Register Here
September 17th: The Impact of NF on Relationships, Learning, and School
Discussion of how NF1 impacts education (IEPs, learning disabilities, social-emotional issues).
Register Here
Filter News

Specialist Neurofibromatosis Nurse - Wales
Find out more about our latest position available in Wales
Read More
Covid-19 Impact on Wellbeing in Families of Children with Rare Neurogenetic Disorders (CoIN Study)
Find out how you can get involved
Read More
Julie Ann Evans
Learn how to navigate the benefits system for people with NF & how to approach Personal Independence Payments (PIP)
Read More
Katie’s Story
Read Katie's inspirational NF Story & how she uses running to overcome her problems
Read More
#OneMoreNurse
We need your help to continue our Specialist Neurofibromatosis Support Network
Read More
NF1 Army’s incredible 10 million steps fundraiser!
read about team 10 million steps fantastic lockdown fundraising efforts
Read More
Billy & Logan’s Story
Read about how engaging in sport supports them both with NF1 related issues
Read More
The One Show Year Book in Lockdown
Jacob & Ella take part in The One Show's Nationwide Yearbook for students in secondary school
Read More
Benefit and Financial Support Matters answered by our Specialist
Find out how you can get your disability benefits and financial support questions answered
Read More