Children’s Tumor Foundation - NF Forum 2020 Moves Online!
19 June 2020
The Children's Tumor Foundation, in collaboration with NYU Langone Health, will be hosting its 2020 NF Forum online this year – responding to the coronavirus pandemic & to help protect the health of patients, families, caregivers and speakers.
This will be the first time ever that the forum is hosted online via zoom across four days this summer: June 25th, July 16th, August 13th, and September 17th. Presenting a unique opportunity for people around the world with Neurofibromatosis to tune in and take part!
The forum is a safe place for families and patients to learn more about Neurofibromatosis from experts around the world, covering the most up to date information on NF including; how to manage the symptoms of NF, information about clinical trials and updates on treatment strategies.
The NF forum also offers those who are living with Neurofibromatosis and their families to; connect, support and learn from each other whilst attending seminars on relevant topics & discussions on NF.
Find out how you can get involved in the events below:
(Note that all live events will take place at 12pm GMT - further info and insights will be available after the events)
June 25th: Poster Session
An interactive Q&A with the creators of some of the most exciting posters from this year’s virtual NF Conference. Clinical poster session moderated by Bruce Korf, MD, PhD + Science poster session moderated by Verena Staedtke, MD, PhD.
Register Here
July 16th: Case Conference
A panel of expert clinicians will discuss two unique medical cases that address various medical complications seen in NF1.
Register Here
August 13th: Clinical Research
Hear about where we have been and where we are going in NF1 research; we will also discuss results of recent trials.
Register Here
September 17th: The Impact of NF on Relationships, Learning, and School
Discussion of how NF1 impacts education (IEPs, learning disabilities, social-emotional issues).
Register Here
Filter News
Quality of Life Survey
If you're living with NF, or a part of someone's network of support; we need your feedback.
Read More
Advice: Travelling With NF
Learn how to navigate travel with NF confidently. Essential tips and resources for smooth, stress-free journeys by train, pla
Read More
Join the NF1 Cutaneous Neurofibroma Consortium Project
Join a groundbreaking NF1 study to help develop better treatments for neurofibromas. Open to adults with a clinical/genetic N
Read More
Nottingham NF1 Information Day 2024
Join us for an insightful NF1 Information Day in Nottingham on October 5, 2024. Expert talks, Q&A, and community connection.
Read More
Everybody is born a Champion
NTUK & RBH's 3rd campaign features GB Paralympian Thomas Young, who has NF1, and celebrates those living with NF
Read More
Mario Antona’s NF2 Story
In memory of his dad, who passed away from NF2, Mario cycled 500 km across the Pyrenees to raise funds for Nerve Tumours UK.
Read More
Eva-Hope’s NF2 story
Tahlia describes how the family felt after receiving daughter Eva-Hope's NF2 diagnosis
Read More
My Neuro Survey 2024
Fill out #MyNeuroSurvey and help to improve treatment, care and support for everyone affected by neurological conditions.
Read More