Centre for Appearance Research (CAR) - Somali Heritage & NF Study
19 May 2021
Researchers at the Centre for Appearance Research (CAR) at the University of the West of England in Bristol, want to hear from people of Somali heritage who have nerve tumours affecting the face. This research will be crucial for informing the development of future support for Somali people with appearance-altering conditions, like nerve tumours. To find out more or to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Further details of the study
Bruna Costa, a researcher and trainee health psychologist at CAR, has launched an interview study to explore the experiences of Somali people with a visible facial difference, like nerve tumours.
Interviews will be remote (i.e., over the phone, on Microsoft Teams or Zoom) and can be in English or Somali. Interviews will cover several topics about the psychosocial impact of living with a visible facial difference.
Findings from this study will be important in helping shape the development of future support for Somali people affected by visible differences.
If you have any questions about the study or would like to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Filter News
Joanna’s Story
Joanna updates us on her breast cancer diagnosis, and how she's going above and beyond in her fundraising and fitness.
Read MoreAndrea’s Story
Andrea shares her long journey for an NF diagnosis and why she wants her story out there.
Read MoreAdvice for Students with NF1, NF2-Schwannomatosis, and Schwannomotosis
Expert advice, information and resources to help you get the most from university.
Read MoreElla’s Story
Ella shares her insights into campus life with NF, her victories and hurdles and the importance of self belief.
Read MoreGeorgia’s Story
Georgia shares her her story of self celebration, the importance of difference and how perseverance is key.
Read MoreNottingham INFormation Day a Big Thank You
Photos, feedback and more from the Nerve Tumours UK INFormation day in Nottingham.
Read MoreQuality of Life Survey
If you're living with NF, or a part of someone's network of support; we need your feedback.
Read MoreAdvice: Travelling With NF
Learn how to navigate travel with NF confidently. Essential tips and resources for smooth, stress-free journeys by train, pla
Read More