Centre for Appearance Research (CAR) - Somali Heritage & NF Study
19 May 2021
Researchers at the Centre for Appearance Research (CAR) at the University of the West of England in Bristol, want to hear from people of Somali heritage who have nerve tumours affecting the face. This research will be crucial for informing the development of future support for Somali people with appearance-altering conditions, like nerve tumours. To find out more or to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Further details of the study
Bruna Costa, a researcher and trainee health psychologist at CAR, has launched an interview study to explore the experiences of Somali people with a visible facial difference, like nerve tumours.
Interviews will be remote (i.e., over the phone, on Microsoft Teams or Zoom) and can be in English or Somali. Interviews will cover several topics about the psychosocial impact of living with a visible facial difference.
Findings from this study will be important in helping shape the development of future support for Somali people affected by visible differences.
If you have any questions about the study or would like to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Filter News

William & Andrew’s NF1 Story
Andrew's using his own obstacles in life to inspire his son William on his NF1 journey.
Read More
First Diagnosis Survey
A survey to improve NF diagnosis support by gathering feedback on early experiences and concerns from those affected.
Read More_800_600_s_c1.jpg)
Working with the hospitality industry & creating safe spaces for everyone
Read More
Visible Differences: Changing The Narrative
Nerve Tumours UK joins multi-organisational workshop to enhance support for those with a visible difference
Read More
Repurposing anti-retroviral drugs to treat NF2 related tumours Retreat Study
Join a brand new study treating tumours in NF2 patients.
Read More_800_600_s_c1.png)
Nerve Tumours UK joins the Neurological Alliance of Scotland
Nerve Tumours UK joins the Neurological Alliance of Scotland.
Read More_800_600_s_c1.png)
Brain scans to give crucial insight into childhood genetic disease
New funding secured for exciting new global research initiative.
Read More
Looking Back, Moving Forward: A Message from Our Charity Director
Read More
Oliver’s Blog
Oliver Bromley shares some personal experiences of visible difference, and how education and kindness can reduce stigma.
Read More