Centre for Appearance Research (CAR) - Somali Heritage & NF Study
19 May 2021
Researchers at the Centre for Appearance Research (CAR) at the University of the West of England in Bristol, want to hear from people of Somali heritage who have nerve tumours affecting the face. This research will be crucial for informing the development of future support for Somali people with appearance-altering conditions, like nerve tumours. To find out more or to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Further details of the study
Bruna Costa, a researcher and trainee health psychologist at CAR, has launched an interview study to explore the experiences of Somali people with a visible facial difference, like nerve tumours.
Interviews will be remote (i.e., over the phone, on Microsoft Teams or Zoom) and can be in English or Somali. Interviews will cover several topics about the psychosocial impact of living with a visible facial difference.
Findings from this study will be important in helping shape the development of future support for Somali people affected by visible differences.
If you have any questions about the study or would like to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Filter News
Milton Keynes NF1 Medical Information Day 2026
Our Milton Keynes NF1 Medical Information Day was on 9 May 2026.
Read More
Beyond Diagnosis: Manchester Community Festival 2026
NF1 and Noonan Syndrome Community Festival. A Day connected to community, learning and curiosity.
Read More
Evie’s NF1 story
Evie's mam Emily & brother Riley are doing 5k/day during May, after Evie was diagnosed with NF1 at the age of three.
Read More
Sacred Heart Chorus and Orchestra Summer Concert
Sacred Heart Chorus and Orchestra are supporting the charity with a concert at Sacred Heart Church Wimbledon
Read More
Team NTUK London Marathon 2026
Congratulations and thank you to Team NTUK for their epic efforts!
Read More
Living with Neurofibromatosis Type 1: A Journey of Resilience, Transformation, and Impact
Our charity ambassador, Amit Ghose, shares his inspirational story.
Read More
London Marathon Motivation 2026
Find out why our Team NTUK runners are taking on the 2026 London Marathon.
Read More
Rare Disease Day 2026: Equity for Rare
A look back on Rare Disease Day: Equity for Rare, 28 February 2026.
Read More