Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News

Expertise in Neurofibromatosis: Within Europe
Find out more about the spread of NF experts across Europe:
Read More
New Gene Therapy at a World-Renowned Research Insitute
Find out more about the new gener therapy that both NTUK and NF2 Biosolutions are strongly supporting
Read More
Deacons Marina’s fun filled fundraiser for NTUK
Find out more about the successful and well received fundraising event here:
Read More
Live Wrestling in aid of Nerve Tumours UK!
Find out more about the brand new unique funraising event here:
Read More
Talking about Neurofibromatosis A Guide for Teens
A new brochure aimed at helping teens with NF has been released by St Louis hospital. Find it here:
Read More
Family Lives Charity
Find out more about the charity that is dedicated to supporting those in all aspects of family life
Read More
All Aboard the Blatchington Branch Fundraiser for NTUK!
Find out more about the miniature railway that has raised money for NTUK
Read More
Sharon’s Story
Sharon has recently applied to run the London Marathon for NTUK, here she tells us a bit more about her experiences with NF
Read More