Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News

Teagan Martin’s first day at Canterbury Secondary School
Have a read about the incredible young girl who continues to defy the odds here
Read More
Kloe van der Merwe - Our NF hero as told by Mum Candice
Hear about the incredibly brave young girl as told by her Mum Candice
Read More
Wass’ Everyday Battlers 10K Stratford Run
Wassim is running the 10K Stratford Run for Nerve Tumours UK. Here he explains his reasons as to why:
Read More
Megan’s Skyfall
Megan is undertaking a sponsored skydive for NTUK as part of her travels! Find out more here
Read More
Glen’s Half Marathon in Support of his Nephew Freddie.
Have a read about the special young boy who has inspired his uncle take on the New Forest Half Marathon
Read More
Jessica’s Amazing Fundraising Efforts
Have a read about the incredible 7 year old fundraising girl who is supporting research into NF1
Read More
Smiling Through
Have a read about Melanie and her courageous young son Emilio (NF1) and the impact NTUK has had on their lives.
Read More
Our 2019 Christmas Card Competition Winner!
See our Christmas Card winning illustration here
Read More
Helen’s Story
Have a read of loving Mum Helen's Story and how she cares for her wonderful daughter Gaby (NF1)
Read More