Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/jessica-1Page-Preview-800-x-500-px_800_600_s_c1.png)
Jessica’s Amazing Fundraising Efforts
Have a read about the incredible 7 year old fundraising girl who is supporting research into NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/smiling-throughPage-Preview-800-x-500-px_800_600_s_c1.png)
Smiling Through
Have a read about Melanie and her courageous young son Emilio (NF1) and the impact NTUK has had on their lives.
Read More![](https://nervetumours.org.uk/images/made/images/common/mimi-nd-emilioArtboard-1_800_600_s_c1.png)
Our 2019 Christmas Card Competition Winner!
See our Christmas Card winning illustration here
Read More![](https://nervetumours.org.uk/images/made/images/common/Helen-2Page-Preview-800-x-500-px_800_600_s_c1.png)
Helen’s Story
Have a read of loving Mum Helen's Story and how she cares for her wonderful daughter Gaby (NF1)
Read More![](https://nervetumours.org.uk/images/made/images/common/LOOKSPage-Preview-800-x-500-px_800_600_s_c1.png)
Looks and Life: A summary of the study
Have a read about the findings from the UWE's "Looks and Life" Study
Read More![](https://nervetumours.org.uk/images/made/images/common/kate-and-esmePage-Preview-800-x-500-px_800_600_s_c1.png)
Kate’s Story
Have a read of Kate's inspiring story including the introduction of her beautiful daughter Esme, who has NF1, into the world.
Read More![](https://nervetumours.org.uk/images/made/images/common/mel-murrell-2Artboard-1_800_600_s_c1.png)
Insights into the work of our support specialists from Mel Murrell
Meet one of our Support Specialists Mel Murrell and read about her impressions on her first year in the role
Read More![](https://nervetumours.org.uk/images/made/images/common/travelsPage-Preview-800-x-500-px_800_600_s_c1.png)
World At Her Feet
Christina has wrtiten a blog partly about living with NF1 and partly about her travels. Find it here:
Read More![](https://nervetumours.org.uk/images/made/images/common/AroojPage-Preview-800-x-500-px_800_600_s_c1.png)
Arooj: The Fashion Blogger with NF
Arooj Aftab, 22, is an influencer, with NF1, who is known for her baggy fashion style
Read More