Latest News
and Events
Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the new medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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![](https://nervetumours.org.uk/images/made/images/common/Diana_Edwards_Nerve_Tumours_UK_Fundraiser_image_5_800_600_s_c1.png)
Diana’s One Month of Rowing for Neurofibromatosis
Diana is taking on an epic 150k rowing challenge - 5k per day to support her daughter Ellie & our NF community
Read More![](https://nervetumours.org.uk/images/made/images/common/Autistica_Research_Festival_Branded_Header_preview_800_600_s_c1.png)
Autistica Research Festival 2021
See how this year's event went and find out how you can watch the best bits if you couldn't make the conference.
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_1837_Carol_Irving_Nurse_Portrait_preview_800_600_s_c1.jpg)
OneMoreNurse joins the NTUK team in Leeds
We're delighted to announce our new Specialist NF Nurse for Leeds, find out more
Read More![](https://nervetumours.org.uk/images/made/images/common/Nerve_Tumours_UK_Running_Team_Asics_10k_2021_preview_800_600_s_c1.png)
The NTUK running team kick starts 2021’s running season in this year’s Asics 10k!
Check out the year's first major running event - see how our NTUK running team got on!
Read More![](https://nervetumours.org.uk/images/made/images/common/alexs-12-monthsPage-Preview-800-x-500-px_800_600_s_c1.png)
Alex’s 12 months of Running
Alex has completed his incredible 12 months of running for NTUK, totalling a whopping 80km – see how he got on!
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_3058_colins_highland_walk_370x280_800_600_s_c1.png)
Colin’s West Highland Walk for NF
Colin has completed his epic journey across the highlands to raise awareness for our NF community. See how he got on.
Read More![](https://nervetumours.org.uk/images/made/images/common/Buzz_lightyear_challenge_image_1_-_previerw_800_600_s_c1.png)
To Infinity & Beyond!
Cameron takes on an incredible quest for NF - 34 miles running, 34 miles cycling, 34 miles rowing and a 1 mile walk with Roo!
Read More![](https://nervetumours.org.uk/images/made/images/common/Runderpants_website_header_-preview_800_600_s_c1.jpg)
Runderpants Is Back!
Take part in an event that's absolutely pants! Runderpants is a fun run, in your pants, for our NF community!
Read More![](https://nervetumours.org.uk/images/made/images/common/Image_of_Young_People_previoew_800_600_s_c1.jpg)
TABI (Teen Appearance and Body Image) - CAR Research Study
Find out how you can take part in the Centre for Appearance Research's study for Young People
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved