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and Events
Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the new medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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Student Voice Prize 2021
The 2021 Student Voice Prize opens on 6th October! #DareToThinkRare for the 8th annual essay competition!
Read More![](https://nervetumours.org.uk/images/made/images/common/CAR_parents_image_1_370x280_800_600_s_c1.jpg)
Centre for Appearance Research - Parent Support Materials Study
The Centre for Appearance Research is doing a study on parent support materials - can you help?
Read More![](https://nervetumours.org.uk/images/made/images/common/YPFI_header_picture_2_370x280_800_600_s_c1.jpg)
Centre for Appearance Research - YP Face IT
YP Face IT offers online support for young people with conditions or injuries affecting their appearance
Read More![](https://nervetumours.org.uk/images/made/images/common/Changing_Faces_Logo_370x280_800_600_s_c1.jpg)
Counselling support from Changing Faces
Changing Faces - Counselling support: confidential one to one support sessions for people with a visible difference
Read More![Nerve Tumours UK Community Survey](https://nervetumours.org.uk/images/made/images/templates/placeholder_800_600_s_c1.png)
Nerve Tumours UK Community Survey
This consultation provided direct feedback to the strategy group, to look at how we can continue to provide our services
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_7819_-_Suzi_NF2_-_edit_370x280_800_600_s_c1.jpg)
Suzi’s NF2 story
Suzi used her own NF2 diagnosis to inspire her research into how identity is experienced by people with NF2
Read More![](https://nervetumours.org.uk/images/made/images/common/Emma_Hartley_Liverpool_Fundraiser_Image_5_370x280_800_600_s_c1.jpg)
Emma’s Story
Emma shares her journey with NF after finding out her daughter, Poppy, has been diagnosed with NF Type 1.
Read More![](https://nervetumours.org.uk/images/made/images/common/tegan-mierle-fDostElVhN8-unsplash_preview_800_600_s_c1.jpg)
Tim’s Story: Living With Neurofibromatosis – it’s a family thing
Tim tells us how Nerve Tumours UK proved to be an invaluable resource and support to him and his family as he was growing up
Read More![](https://nervetumours.org.uk/images/made/images/common/Out_Walking_370x280_800_600_s_c1.jpg)
Dalvinder’s 100km Ultra Challenge for NF
Dalvinder on the 100km Ultra Challenge Thames Path walk to raise money for NF
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
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