2nd Lockdown Announcement
05 November 2020
Dear Friends,
Well, here we go again! As we enter our second national lockdown, our team here at NTUK will continue to work as hard as we possibly can to help our NF community across the UK to weather the storms we may now face. While the pandemic and the lockdown affects all of us, it is extremely important to remember, and acknowledge, that we are not all in the same boat, and each member of our community may face their very own unique problems. The team is here to help you in any way we can, so please do not hesitate to contact us.
We can help in so many ways. First and foremost, our regional nurses are still here and carrying out their duties; there are sections on our website that cover medical issues, carers' information, issues around employment, school information, etc; and our national helpline will be operational as usual on Monday and Wednesday each week.
Please do continue to follow the government guidelines during this period. It is only if we all pull together, respect each other and behave as we should, that we will get the better of this dreadful virus. As we often say, we are stronger together!
With my warmest wishes,
Karen
For further information visit our help section
![](/images/made/images/common/5eb84722f92b58c9a01a2279_Gov-Message_1200x450_800_300_s_c1.jpg)
Filter News
![](https://nervetumours.org.uk/images/made/images/common/FB_IMG_1667295994710_370x280_800_600_s_c1.jpg)
Olivia’s NF1 story
Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses
Read More![](https://nervetumours.org.uk/images/made/images/common/20230517_190605_370x280_800_600_s_c1.jpg)
Eashan’s NF1 story
'Why Run'... Eashan was diagnosed with NF1 after losing his eyesight when he was 5. His mother Jen tells his story.
Read More![](https://nervetumours.org.uk/images/made/images/common/20580-Ratios-Bus-Press-Advert-225x168_New_code_Low_res_370x280_800_600_s_c1.jpg)
2023 Awareness Campaign
Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.
Read More![](https://nervetumours.org.uk/images/made/images/common/CAR_VTCT_logo_370x280_800_600_s_c1.jpg)
Disclosing and explaining visible differences - CAR Workshop
Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebecca Rennison
Read More![](https://nervetumours.org.uk/images/made/images/common/Jo__Oscar_370x280_800_600_s_c1.jpg)
Jo Ward’s Avastin Blog
Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey
Read More![](https://nervetumours.org.uk/images/made/images/common/NL_and_HRH_Pune_with_photo_370x280_800_600_s_c1.jpg)
Nigel’s story - Normal is as normal does
Nigel lived a normal life until age 47. The next 20 years took him from NF1 to NF2 to Schwannomatosis to mosaic NF2
Read More![](https://nervetumours.org.uk/images/made/images/common/Helen_Tomkins_370x280_800_600_s_c1.jpg)
Meet Helen
Helen is the Specialist NF Advisor for Devon and Cornwall and is based at Derriford Hospital in Plymouth.
Read More![](https://nervetumours.org.uk/images/made/images/common/Rebecca_Rennison_370x280_800_600_s_c1.jpg)
Meet Rebecca
Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_Neuro_Alliance_Huntingtons_logos_370x280_800_600_s_c1.jpg)
World Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
Read More