2nd Lockdown Announcement
05 November 2020
Dear Friends,
Well, here we go again! As we enter our second national lockdown, our team here at NTUK will continue to work as hard as we possibly can to help our NF community across the UK to weather the storms we may now face. While the pandemic and the lockdown affects all of us, it is extremely important to remember, and acknowledge, that we are not all in the same boat, and each member of our community may face their very own unique problems. The team is here to help you in any way we can, so please do not hesitate to contact us.
We can help in so many ways. First and foremost, our regional nurses are still here and carrying out their duties; there are sections on our website that cover medical issues, carers' information, issues around employment, school information, etc; and our national helpline will be operational as usual on Monday and Wednesday each week.
Please do continue to follow the government guidelines during this period. It is only if we all pull together, respect each other and behave as we should, that we will get the better of this dreadful virus. As we often say, we are stronger together!
With my warmest wishes,
Karen
For further information visit our help section
Filter News
Runderpants fun run
Get your Runderpants here! Set up a fun run wearing some special fundraising pants
Read MoreMeet Sarah, our new Specialist NF Nurse
Sarah will be based in Leeds, supporting families across Yorkshire and Humberside
Read MoreMeet Charmaine, Our New Specialist NF Nurse
Read MoreOlivia’s NF1 story
Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses
Read MoreEashan’s NF1 story
'Why Run'... Eashan was diagnosed with NF1 after losing his eyesight when he was 5. His mother Jen tells his story.
Read More2023 Awareness Campaign
Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.
Read MoreDisclosing and explaining visible differences - CAR Workshop
Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebecca Rennison
Read MoreJo Ward’s Avastin Blog
Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey
Read MoreNigel’s story - Normal is as normal does
Nigel lived a normal life until age 47. The next 20 years took him from NF1 to NF2 to Schwannomatosis to mosaic NF2
Read More