2nd Lockdown Announcement
05 November 2020
Dear Friends,
Well, here we go again! As we enter our second national lockdown, our team here at NTUK will continue to work as hard as we possibly can to help our NF community across the UK to weather the storms we may now face. While the pandemic and the lockdown affects all of us, it is extremely important to remember, and acknowledge, that we are not all in the same boat, and each member of our community may face their very own unique problems. The team is here to help you in any way we can, so please do not hesitate to contact us.
We can help in so many ways. First and foremost, our regional nurses are still here and carrying out their duties; there are sections on our website that cover medical issues, carers' information, issues around employment, school information, etc; and our national helpline will be operational as usual on Monday and Wednesday each week.
Please do continue to follow the government guidelines during this period. It is only if we all pull together, respect each other and behave as we should, that we will get the better of this dreadful virus. As we often say, we are stronger together!
With my warmest wishes,
Karen
For further information visit our help section
Filter News
Ragbir’s London Marathon
Ragbir is the Paediatric Lead for NF1 in Leeds and is running the London Marathon
Read MoreRare Disease Day 2023
NTUK joined in with Rare Disease Day 2023, helping raise awareness of how better coordination of care can improve lives.
Read MoreAshley’s NF1 story
Ashley loves red pandas, he's a 32 year old IT Specialist and has NF1. He is running a half marathon to raise NF awareness
Read MoreGuy’s & St.Thomas’s Monthly Care Awards
NF paediatric nursing team, Mandy and Katrina win the Guy’s and St Thomas’ Hospital November CARE Award 2022
Read MoreCost of Living Crisis - Initiative
NTUK have co-signed an open letter to the Chancellor of the Exchequer on the cost of living
Read MoreLiving with NF1: psychological impact & experiences
Research: Understanding the reality of the NF1 journey from diagnosis to daily life, and the emotional impact it has
Read MoreKian’s NF2 Blog
Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics
Read More