iNForm

What is iNForm all about?

You shouldn't have to explain everything on your own...

NF, the medical group name for Neurofibromatosis Type 1, NF2-related Schwannomatosis, and Schwannomatosis, affects over 26,500 people in the UK, but awareness is still low. That means schools, GPs, universities, and workplaces often don’t understand the condition, or how to support those living with it.

That’s where iNForm comes in.

iNForm is a growing collection of expert-written guides, resources, and ready-to-use materials designed to help you inform the key people, whether you’re living with NF, or caring for someone who is. From teachers to employers and medical professionals, iNForm gives them the language, context, and understanding they need, to offer better support.

It’s not just a letter. It’s a starting point for better care, smoother conversations, and fewer barriers.

The iNForm series currently includes:

• iNForm your school – for teachers, SENCOs, and school leaders
• iNForm your GP – to improve primary care understanding
• iNForm your university – for academic and wellbeing support
• iNForm your workplace – to help managers and colleagues understand NF

Each guide explains how NF can affect learning, health, and daily life - so the responsibility doesn’t fall entirely on you to explain.

Not sure what you need?

Whether you are a professional looking to support someone in your care, or just aren't sure what iNFormation you need, you can contact us directly at info@nervetumours.org.uk and/or call us on 020 8439 1234

Download and share an iNForm pack today, to help ensure that your child's school, or your doctor, university, or employer is equipped to give the right support.

Let’s stop leaving awareness to chance.
Let’s iNForm.