iNForm

What is iNForm all about?

You shouldn't have to explain everything on your own...

NF, the medical group name for Neurofibromatosis Type 1, NF2-related-Schwannomatosis and Schwannomatosis, affects over 26,500 people in the UK, but awareness is still low. That means schools, GPs, universities and workplaces often don’t understand the condition or how to support those living with it.

That’s where iNForm comes in.

iNForm is a growing collection of expert-written guides, resources and ready-to-use materials designed to help you inform the key people, whether you’re living with NF or caring for someone who is. From teachers to employers and medical professionals, iNForm gives them the language, context and understanding they need to offer better support.

It’s not just a letter. It’s a starting point for better care, smoother conversations and fewer barriers.

The iNForm series currently includes:

• iNForm your GP – to improve primary care understanding
• iNForm your school – for teachers, SENCOs, and school leaders
• iNForm your transition to adult services - for young people moving their care from children's services to adult's services
• iNForm your university – for academic and wellbeing support
• iNForm your workplace – to help managers and colleagues understand NF

Each guide explains how NF can affect learning, health and daily life, so the responsibility doesn’t fall entirely on you to explain.

Not sure what you need?

Whether you are a professional looking to support someone in your care or just aren't sure what iNFormation you need, you can contact us directly at info@nervetumours.org.uk and/or call us on 020 8439 1234

Download and share an iNForm pack today, to help ensure that your child's school, or your doctor, university or employer is equipped to give the right support.

Let’s stop leaving awareness to chance.
Let’s iNForm.