iNForm Your GP

iNForm Your GP

Letter to your GP

NF, the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN) is not well known. One of the consequences of this is that support and medical care for people with nerve tumours and their families is often patchy and/or inadequate. This is particularly harmful in the NHS, for example. Whether you are supported by a Specialist NF Nurse depends on a postcode lottery.

We would like to build awareness and support among GPs and others involved in the care of those diagnosed with the condition, by providing them with the necessary education surrounding NF. This in turn will benefit the NF community and raise awareness.   

Download the “Letter to your GP” and pass this letter on to anyone who is professionally involved in the care of those diagnosed with the condition, but who might not be fully informed, or a specialist in the field looking after NF patients. Tell them to get directly in touch with us for more information or to copy and pass it on to someone who is affected by the condition and tell them to contact us.  Additionally, the Annual Review Guidelines below, will give your GP further guidance and information. 

If you would like more information, please contact info@nervetumours.org.uk

If you or your child have a learning disability, you can join a register at your doctor’s surgery. Anyone of any age, and any level of learning disability can join the learning disability register. Please download this letter - you can take it to your GP and request for you (or your child) to be added to the Learning Disability Register.