iNForm Your University
iNForm Your University
Heading off to university is a big milestone, and if you’re living with Neurofibromatosis Type 1 (NF1), NF2-related Schwannomatosis (NF2) or Schwannomatosis (SWN), you might have a few extra things to think about. But here’s the good news: university is absolutely achievable — and it can be an incredible experience.
Whether you're applying for the first time, returning to education, or already at uni and looking for support, our iNForm Your University guide is here to help you every step of the way.
Foreword from Georgia
"Embrace your individuality—and help end the stigma around disability.Whether a condition is visible, well-known, or not, it deserves understanding. After years of struggling to find answers, I realised many others in the NF1 community felt the same. That shared experience led me to write my university dissertation on NF1—its wide-ranging effects, how differently it presents in each person, and why it needs greater recognition in education. I explored the biology of NF1, associated co-morbidities, the impact of limited awareness, and the educational barriers faced by those living with it. Now, I’m committed to raising awareness—especially in universities—and using my work to start important conversations. No matter the challenges you face, embrace your uniqueness. It’s your superpower. There is strength in being different."
— Georgia Alexandra Baum, NTUK Ambassador
"No matter the challenges you face, embrace your uniqueness. It’s your superpower. There is strength in being different."
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What’s Inside the Guide?
Our comprehensive, student-written guide covers everything you need to know — from choosing the right course to managing your condition on campus. Take a look for yourself below to see more
Applying to University
Practical advice on applying through UCAS, disclosing your condition (if you choose to), writing your personal statement, and what paperwork you’ll need in place.
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Student Finance & DSA
A clear breakdown of how to access financial support, including tuition loans, maintenance support, and Disabled Students' Allowance (DSA) — and how to apply before you even enrol.
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Finding the Right Course & Pathway
Explore traditional and alternative routes to university, including Access to HE Diplomas, BTECs, foundation years, or Open University study — all with NF in mind.
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Accommodation
Guidance on accessible housing options, sensory-friendly spaces, and how to work with your university’s disability team to get what you need.
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Travel & Placements
From campus transport to offsite placements and local council support for travel costs, we’ve included practical tools for keeping your education accessible.
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University Support & Disclosure
Learn who to contact before term starts (Disability Services, Wellbeing Teams, Tutors), what to share, and how to advocate for your needs with confidence.
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Mental Health & Peer Support
Starting uni can be emotionally overwhelming — we signpost support from the Centre for Appearance Research, university wellbeing services, and NTUK’s own mental health resources and communities.
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iNForm Your University Checklist
Starting university can be a whirlwind — especially when you’re also managing Neurofibromatosis (NF1, NF2, or SWN). That’s why we’ve created this handy A5 checklist: a brief, friendly reminder of what to think about and who to contact as you prepare for uni life.
What’s inside the Checklist?
Keep track of your progress with our handy summary sheet.
Start the Conversation
Download this letter to help communicate your condition and how it may affect your time at university. It’s a clear and respectful way to inform staff and open up a discussion about support and understanding.
Feel free to copy and paste the text into an email, or use it as a guide to help you communicate with the right people in a way that feels comfortable to you.
What's in the Letter?
Communicate your condition as soon as you can, in a way that makes you feel comfortable.
Download Summary
Incase you missed the links above, you can find them all here:
Related Pages
iNForm
Find out more about our programme aimed at improving the care and education for those affected by NF across the country.
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Georgia’s Story
Georgia shares her her story of self celebration, the importance of difference and how perseverance is key.
Find out more
The New National Helpline
The National Helpline is available on Monday, Wednesday and Friday
Find out more