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My little soldier

My little soldier

Shine a light marathon for fynley and nf

Helen Rice's fundraising page

01 May 2023

Run

This time last year our beautiful boy was diagnosed with neurofibromatosis. Anyone who knows him knows he is a happy and adventurous little boy who lights up every room. He has overcome so much since his diagnosis including learning to walk again on a perminant broken leg. But how it will affect him through the years to come is still yet unknown.
It is a life long disease and effects 26.5k people in the UK alone, and yet not alot is known about the disease. So I have chosen to run the Shine A Light Marathon over the Month of May – World Neurofibromatosis Awareness Month 2023! Instead of 26.2 miles, I will run 26.5 miles for the 26,500 affected by Neurofibromatosis in the UK – go the extra 0.3 miles for our NF community who have been so helpful and supportive since fynley’s diagnosis.

Created by: Helen Rice on 26/03/2023

£575.00

Goal: £250.00

Offline Donations

£0.00

With Gift Aid

£687.50

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41 Donations

Sharon wright

26/05/2023

Well done, Helen.

£10.00

Hugh Williams

25/05/2023

Well done, Helen.

£10.00

Martin

23/05/2023

Well done, Helen.

£10.00

Dave

18/05/2023

Well done, Helen.

£5.00

Chuck

17/05/2023

Well done, Helen.

£5.00

Jill Mustard

28/04/2023

Well done, Helen.

£20.00

Nicola Wegz

13/04/2023

Well done, Helen.

£20.00

Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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