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Find out MoreWorking for the nerve tumours community
Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have NF the medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We’re here to improve lives for people with NF, by making sure they have access to the help they require.
Our Helpline is open on Monday, Wednesday & Friday from 9am to 5pm on 07939 046030.
On the other days of the week, the head office team can be contacted from 9am to 5pm on 0208 439 1234.
Outside of these hours, and if you think it is an emergency, please contact your GP, or go to your nearest A&E Department.
For further information on anything to do with NF, please visit our Help Section.
Kieran's Story
“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”
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Emily's Story
Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from NF2-related Schwannomatosis (NF2)…
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Latest News
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The Boy Who Played Cricket
Take a look behind the scenes of team NTUK's visit to the 'The Boy Who Played Cricket' opening.
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Ella’s Story
Ella shares her insights into campus life with NF; her victories & hurdles & the importance of self- belief.
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Amit Ghose: The Unscripted Podcast
Caught the brand new pod by NTUK Ambassador Amit Ghose? Everything you need to know about The Unscripted Podcast inside.
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So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved