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If you have Neurofibromatosis, we're here to help you.
Find out moreOver 26,500 people are depending on you. (No pressure.)
Find out moreShine A Light on Neurofibromatosis
Find out more"Stay positive, live your life as you would do..."
Read Kieran's storyWorking for the nerve tumours community
Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, by making sure those affected have access to the help they require.
Find out more about nerve tumours
What is NF1?
About 25,000 people in the UK have NF1, a genetic condition that causes Nerve Tumours to grow where they shouldn't.
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What is NF2?
NF2 is a rare genetic disorder that is present at birth, though signs do not usually appear until the teens or twenties.
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What is Schwannomatosis?
A very rare condition sharing some features with NF2, but people rarely develop growths on hearing and balance nerves.
Find out moreKieran's Story
“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”
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Emily's Story
Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…
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Latest News
Medicine and Me: Living with Nerve Tumours at the Royal Society of Medicine
Find out more about the event at the Medicine & Me event at the Royal Society of Medicine here:
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New Research Study for Children and Young People with Neurofibromatosis Type 1
Find out more about the study and how you can participate here:
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