Home
If you have Neurofibromatosis, we're here to help you.
Find out moreOver 26,500 people are depending on you. (No pressure.)
Find out moreShine A Light on Neurofibromatosis
Find out more"Stay positive, live your life as you would do..."
Read Kieran's storyWorking for the nerve tumours community
Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.
Find out more about nerve tumours
What is NF1?
About 25,000 people in the UK have NF1, a genetic condition that causes Nerve Tumours to grow where they shouldn't.
Find out more
What is NF2?
NF2 is a rare genetic disorder that is present at birth, though signs do not usually appear until the teens or twenties.
Find out more
What is Schwannomatosis?
A very rare condition sharing some features with NF2, but people rarely develop growths on hearing and balance nerves.
Find out moreKieran's Story
“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”
Read more
Emily's Story
Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…
Read more
Latest News
2019 NF Conference
Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF
Read More
Nerve Tumours UK joins the “Embracing Complexity” Coalition
Find out more about the coalition we have decided to join
Read More
Kate Swallow’s Fantastic Fundraiser at the Tipsy Pig
Find out more about the succesful and throughly enjoyed charity music event hosted by Kate Swallow at the Tipsy Pig
Read MoreWe
are funded
100% by
voluntary
donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved