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Amit Ghose: The Unscripted Podcast

09 July 2025

 

Welcome to the brand new podcast hosted by Nerve Tumours UK Ambassador, Speaker & International Author Amit Ghose.

 

Tune in every Tuesday as Amit sits down with leading voices in the visible difference & disabled community; sharing honest and authentic stories on identity, mental health & self-worth. 

"If you’re looking for raw, powerful conversations that go beyond surface-level interviews, this podcast is for you. Whether you’re building confidence, navigating life with a rare condition, or just need a reminder that you’re not alone — this space is for you."

– Amit Ghose

Episode 9: Tracy Page

 

Amit sits down with Tracy Page: On this episode of Unscripted, Tracey shares her powerful story of living with a gambling addiction – from losing everything to slowly rebuilding her life. With over 1.3 million people in the UK struggling with gambling, the impact is far-reaching. From university students hooked on online betting to families torn apart, gambling addiction can destroy lives — and tragically, even lead to suicide. Tracey’s journey is raw, honest, and inspiring. She opens up about the darkest moments of her addiction, the turning point that helped her change, and the steps she’s taking to build a new future. This conversation is for:

  • Anyone battling gambling addiction or supporting a loved one.
  • Students and young adults caught up in betting culture.
  • People seeking real-life stories of recovery, resilience, and hope.

Her story proves that no matter how far you fall, recovery is possible. Watch, listen, and share this episode to raise awareness and remind anyone struggling that they are not alone.

This episode is now live on all major streaming platforms

Episode 8: Professor Diana Harcourt

 

Amit sits down with Professor Diana Harcourt: Professor of Appearance & Health Psychology at the Centre for Appearance Research (CAR). Nerve Tumours UK has arranged the session, following the ongoing cooperation with CAR and their support to the NF community.

What role does appearance really play in our lives? We dive into the psychology of body image, confidence, and self-acceptance, exploring how appearance shapes identity and self-worth. The challenges people with visible differences face in dating, work, and daily life. Why does society react the way it does to visible differences? Amit and Diana talk about the impact of social media, stereotypes, representation in TV and film, and discuss evidence-based strategies to build resilience and acceptance. This conversation is a must-watch for anyone interested in appearance, psychology, visible difference, and confidence.

For further information, vist the Centre for Appearance Research (CAR) website www.uwe.ac.uk/car and the Visible Difference Support Hub www.visibledifferencesupporthub.com  

Episode 7: Paula

 

Amit sits down with Paula; Paula wanted the “perfect” body to fit society’s beauty standards — instead, cosmetic surgery took her to the edge of death… twice. In this powerful interview, Paula reveals how her heart stopped, how she watched doctors work on her body from above, and the life-changing lessons she learned about self-worth, acceptance, and living with purpose.


If you’ve ever thought about plastic surgery, cosmetic procedures, or chasing society’s idea of perfection — this is the video you need to see.
 

Episode 6: Tania Gerard

 

Amit sits down with Tania Gerard, a TEDx speaker, ADHD UK Ambassador, and the Founder of award-winning consultancy Tania Gerard Digital, one of the UK’s first consultancies focused on neurodiversity and accessible marketing. Drawing on her lived experience with ADHD and autism, and a decade-long career rising from intern to Head of Digital, Tania helps companies create workplaces, digital content, and brands that work for all brains while achieving WCAG* compliance.

* Web Content Accessibility Guidelines. These are a set of internationally recognized recommendations for making web content more accessible to people with disabilities.

Episode 5: Harry Singha

 

Amit sits down with Harry Singha – a globally recognised speaker, humanitarian, and founder of leadership programmes for youth and business leaders. With over 35 years of experience, Harry opens up about his journey from surviving domestic violence and homelessness to becoming a mentor to thousands worldwide.

Episode 4: Gillian Kgotla

 

Amit sits down with Gillian Kgolta. Gillian has been living with Parry Romberg Syndrome since the age of 12—a rare condition that caused atrophy on the left side of her face. But rather than letting this define her, she transformed her journey into a beacon of empowerment for others.

 

 

Episode 3: Carishma Patel

 

Amit sits down with Carishma Patel as she shares how living with chronic pelvic pain, grief, and emotional trauma led to a period of self-isolation. She reveals how poetry became her outlet — and how speaking her truth helped her survive. 

Episode 2: Dr. Amo Raju OBE

 

Amit sits down with Dr. Amo Raju OBE, born with cerebral palsy, to unpack a story of resilience, identity and ambition that defies stereotypes.

Episode 1: Oliver Bromley

 

Amit sits down with advocate Oliver Bromley, who lives with Neurofibromatosis type 1 (NF1), to explore what it means to live with a visible difference in a world that often refuses to look deeper

Caught the pod? Get involved!

Leave a comment on your favourite episode. Don't forget to like and share to help our community and raise NF awareness.

Masterclasses in NF: Ophthalmologic Findings & Orthopic Eye Examination in NF1 and NF2-Related Schwannomatosis

Ophthalmologic Findings & Orthopic Eye Examination in NF1 and NF2-Related Schwannomatosis

Prof. Dr. Berthold Pemp

OT Sabine Koinig

Masterclasses in NF: Plexiform Neurofibromas in NF1 - General Course and Neuroradiology

Plexiform Neurofibromas in NF1 - General Course and Neuroradiology

Assoc. Prof. Dr. Gregor Kasprian

Dr. Hector Salvador, MD

Masterclasses in NF: The Patients’ Perspective: A Masterclass on NF Care Held by NF Patients

Masterclasses in NF: Treatment Strategies for Vestibular Schwannomas: When to Treat? How to Treat?

Treatment Strategies for Vestibular Schwannomas: When to Treat? How to Treat?

 

Michel Kalamarides MD

Masterclasses in NF: Management Of Plexiform Neurofibromatosis in NF1- Rianne Oosterbrink, Justus L Groen, Karine Lascelles

Masterclasses in NF1: 1.Management Of Plexiform Neurofibromatosis in NF1

Rianne Oosterbrink MD

Justus L Groen MD

Karine Lascelles MD

Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome

Prof. Dr. Katharina Wimmer, Medical University of Innsbruck

Masterclasses in NF: Rare NF1-Associated Tumors in Adults - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: Rare NF1-Associated Tumors in Adults

Eric Legius, MD, PhD, University Hospital Leuven

Prof. Ellen Denayer, University Hospital Leuven

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis

Simon Freeman, MPhil FRCS, Manchester Royal Infirmary and Salford Royal Hospital

Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

Masterclasses in NF: NF1 Dermatological Manifestations

Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

Masterclasses in NF: Breast Cancer in NF1

Gareth Evans, MD, University of Manchester, UK

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis

David Pang, MD, ChB. Guys and St Thomas' Hospital NHS Trust, London

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches

Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis

Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

NF2 Working Together: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

Masterclasses in NF: Surgery in NF2

Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches - Shruti Garg, Andre Rietman

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches

Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis - Susie Henley, Thomas Pletschko & Verena Rosenmayr

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis

Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

Masterclasses in NF: NF1 Pediatric Management

Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond - Amedeo Azizi

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond

Amedeo Azizi, MD, PhD, Head of the Paediatric Neurofibromatosis Program and Paediatric Neuro-Oncology Program, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Orthopedic Manifestations - Eric Legius and Christophe Glorion

Masterclasses in NF: NF1 Orthopedic Manifestations

Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK

Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas - Pierre Wolkenstein and Sirkku Peltonen

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas

Pierre Wolkenstein, MD, PhD. Hopital Henri-Mondor, Paris, France. Head of the Department of Dermatology

Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

BPNA Keynote Lecture - Prof Rosalie Ferner - Neurofibromatosis 1 in the 21st Century

‘Neurofibromatosis 1 in the 21st Century’

Keynote Lecture at the 48th British Paediatric Neurology Association Annual Scientific Meeting on 21st January 2022

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK