Your NF questions answered directly from the Top!!
04 June 2020
Professor Rosalie Ferner, National Lead for NF1, Trustee and Member of the Nerve Tumours UK Medical Advisory Board
and Mary Thomas, Clinical Neurofibromatosis Nurse at Guy's and St Thomas' NHS Foundation Trust
have very kindly agreed to take medical questions from our members, particularly about issues that are concerning you in relation to NF in the current crisis.
They would also like you to feedback your views on how you are finding telephone consultations.
Send your questions directly to info@nervetumours.org.uk
Please remember that they cannot answer any particularly personal medical questions, but if you do have any major and immediate concerns please call the Nerve Tumours UK National Helpline on 0793 046030 that is operating each working day at present.
Filter News
Mobile Device Usage by Young Children with Special Educational Needs (SEN) or Disabilities in Their Home
Research: exploring current use of mobile devices in the home - parents' perspectives & experiences
Read MoreNF2 and Radiotherapy
Research: Studying the risk of serious side effects of radiotherapy in people with NF2
Read MoreSally’s NF1 story
Sally tells a story that will resonate - devastation at diagnosis, gratitude for incredible support & making the most of life
Read MoreNational NF2 Meeting
A report from the annual National NF2 meeting, with NTUK in attendance
Read MoreNF International and National meetings in Manchester
NTUK reports back from the NF Patients Community Day and the 20th European Neurofibromatosis Meeting in Manchester
Read MoreMindful Parenting Study
Research study: Mindful Parenting Programme for parents or carers of children aged 4-16 living with a visible difference
Read MoreAdam Buxton and some colleagues - NTUK Comedy Night
Join us at the Union Chapel, London on Thursday 24th November for the latest comedy night to celebrate 40 years of NTUK
Read MoreWe know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
Read MoreThe New National Helpline
The National Helpline is expanding to Monday, Wednesday and Friday, from early October
Read More