World NF2 Day 2021 Emily Owen Member of our Board of Trustees Takes over our social
20 May 2021
Happy NF2 Day 2021
My name's Emily. I am a Trustee of Nerve Tumours UK and I have NF2 so, when I say 'Happy NF2 Day,' I'm not thinking that everything about NF2 is happy! I know it's not! but I do know that on NF2 Day we can unite, we can join together and we can celebrate each other and make sure that the voices of those affected with Neurofibromatosis Type 2 are heard in a changing world.
So, throughout today, at 22 minutes past the hour - 22 because NF2 is a gene defect on chromosome 22 so, 22 minutes past the hour there will be a post on NTUK's social media channels.
It will just be a little HAIKU poem, which it would be great if you comment on, or like, or share, so we can all join together and be a real NF2 family today.
So, yes, Happy NF2 Day, everyone!








Filter News

Breast Cancer in Neurofibromatosis Type 1
Professor Gareth Evans takes us through a summary of the current research around the links between NF1 and breast cancer
Read More_800_600_s_c1.jpg)
Bromley NF1 Info Day 2024
Join us for an insightful NF1 Information Day in Bromley on November 23, 2024. Expert talks, Q&A, and community connection.
Read More
Joanna’s Story
Joanna updates us on her breast cancer diagnosis, and how she's going above and beyond in her fundraising and fitness.
Read More_800_600_s_c1.jpeg)
Andrea’s Story
Andrea shares her long journey for an NF diagnosis and why she wants her story out there.
Read More_800_600_s_c1.png)
Advice for Students with NF1, NF2-Schwannomatosis, and Schwannomotosis
Expert advice, information and resources to help you get the most from university.
Read More_800_600_s_c1.jpg)
Ella’s Story
Ella shares her insights into campus life with NF, her victories and hurdles and the importance of self belief.
Read More_800_600_s_c1.jpeg)
Georgia’s Story
Georgia shares her her story of self celebration, the importance of difference and how perseverance is key.
Read More_800_600_s_c1.jpg)
Nottingham INFormation Day a Big Thank You
Photos, feedback and more from the Nerve Tumours UK INFormation day in Nottingham.
Read More