World NF2 Day 2021 Emily Owen Member of our Board of Trustees Takes over our social
20 May 2021
Happy NF2 Day 2021
My name's Emily. I am a Trustee of Nerve Tumours UK and I have NF2 so, when I say 'Happy NF2 Day,' I'm not thinking that everything about NF2 is happy! I know it's not! but I do know that on NF2 Day we can unite, we can join together and we can celebrate each other and make sure that the voices of those affected with Neurofibromatosis Type 2 are heard in a changing world.
So, throughout today, at 22 minutes past the hour - 22 because NF2 is a gene defect on chromosome 22 so, 22 minutes past the hour there will be a post on NTUK's social media channels.
It will just be a little HAIKU poem, which it would be great if you comment on, or like, or share, so we can all join together and be a real NF2 family today.
So, yes, Happy NF2 Day, everyone!
 
                 
                 
                 
                 
                 
                 
                 
                Filter News
 
                                
                                
                            
                            Freddie’s motto: “Be kind, be brave and be happy”
Meet Freddie: diagnosed with NF1 as a baby, he loves performing and has a role in soon to be released film Christmas Karma
Read More 
                                
                                
                            
                            Understanding Neurofibromatosis Type 1 (NF1): A surgeon’s thoughts
Christopher Duff is a plastic surgeon working with NF1 patients in Manchester, he answers some common questions from patients
Read More 
                                
                                
                            
                            Understanding NF1: A guide to skin neurofibromas and their treatment
This guide is for people with NF1 and explains what neurofibromas are and what treatments might help.
Read More 
                                
                                
                            
                            Olivia’s NF1 story
Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses
Read More 
                                
                                
                            
                            Revisiting the GCSE class of 2020
Five years on from their GCSEs, we speak to Ella, Thomas and Noah to discover what they have been up to
Read More 
                                
                                
                            
                            Benjamin’s NF1 story
11 year old Benjamin has NF1 and is the inspiration for his family's fundraising
Read More_3_800_600_s_c1.jpg) 
                                
                                
                            
                            Lynne Highy joins our team of Specialist NF Advisors
Read all about the newest addition to our team.
Read More 
                                
                                
                            
                            NF Academy 2025: Georgia’s Blog
NTUK ambassador Georgia Baum shares her transformative experience of attending the NF Academy 2025 in Barcelona
Read More 
                     
                                
                                
                            