World NF2 Day 2021 Emily Owen Member of our Board of Trustees Takes over our social
20 May 2021
Happy NF2 Day 2021
My name's Emily. I am a Trustee of Nerve Tumours UK and I have NF2 so, when I say 'Happy NF2 Day,' I'm not thinking that everything about NF2 is happy! I know it's not! but I do know that on NF2 Day we can unite, we can join together and we can celebrate each other and make sure that the voices of those affected with Neurofibromatosis Type 2 are heard in a changing world.
So, throughout today, at 22 minutes past the hour - 22 because NF2 is a gene defect on chromosome 22 so, 22 minutes past the hour there will be a post on NTUK's social media channels.
It will just be a little HAIKU poem, which it would be great if you comment on, or like, or share, so we can all join together and be a real NF2 family today.
So, yes, Happy NF2 Day, everyone!








Filter News
_800_600_s_c1.jpg)
World NF Awareness Month 2025: In Review
A look back at some of the highlights of World NF Awareness Month, May 2025.
Read More_1_800_600_s_c1.jpg)
Emily Owen: World NF2 Day
Our charity Ambassador offers her thoughts and guidance on NF2 day
Read More
Shine A Light on NF May 2025
The Shine A Light on NF 2025 awareness campaign had 176 buildings around the UK & the Republic of Ireland lit up blue!
Read More_800_600_s_c1.jpg)
Mohamed’s NF Story
Mohamed opens up about his NF journey and why he's now thriving after being diagnosed.
Read More
Do charity ads get on your nerves?
The 4th NTUK and RBH digital media awareness campaign features a cheeky attention grabbing advert
Read More
Laura’s NF1 Awareness Story
Laura shares her NF1 story and tells us how she is raising awareness for World NF Awareness Month
Read More_1_800_600_s_c1.jpg)
Living with Neurofibromatosis Type 1: A Journey of Resilience, Transformation, and Impact
Our new charity ambassador, Amit Ghose, shares his inspirational story.
Read More_1_800_600_s_c1.jpg)
NF2 Quality of Life Questionnaire
The Massachusetts General Hospital NF research team would like your help to test a new quality of life questionnaire
Read More