Working For The NF Community and Helping to Protect and Save The NHS
26 March 2020

Nerve Tumours UK is fully dedicated to the health and well-being of our NF community. We work very closely with the NHS, funding posts based within NHS Foundations, therefore sharing the work and helping to carry the financial burden. Our nurses in the hospitals around the country are carrying on as best with business as usual, supporting those with NF, their families & carers.
But now we need your help too. To keep our service intact, and to move forward when this crisis is over, we need your support now, more than ever.
We have been trying to think of inventive ways to fundraise whilst stuck indoors, so why not join our "Big House Challenge!"
There is always somewhere that is in need of some spring cleaning....a room, cupboard, old coats, old bags, etc. You are bound to find some loose change...so why not donate it to Nerve Tumours UK, on the link below!
As the saying goes, "Every little helps!" Help us to continue helping you, our community.
Please follow all guidelines, take care and stay safe!
Karen Cockburn
Charity Director
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Joanna’s story
Joanna highlights the importance of women with NF1 receiving mammograms, and being able to train for the 2023 London Marathon
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Mobile Device Usage by Young Children with Special Educational Needs (SEN) or Disabilities in Their Home
Research: exploring current use of mobile devices in the home - parents' perspectives & experiences
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NF2 and Radiotherapy
Research: Studying the risk of serious side effects of radiotherapy in people with NF2
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Sally’s NF1 story
Sally tells a story that will resonate - devastation at diagnosis, gratitude for incredible support & making the most of life
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National NF2 Meeting
A report from the annual National NF2 meeting, with NTUK in attendance
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NF International and National meetings in Manchester
NTUK reports back from the NF Patients Community Day and the 20th European Neurofibromatosis Meeting in Manchester
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Mindful Parenting Study
Research study: Mindful Parenting Programme for parents or carers of children aged 4-16 living with a visible difference
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Adam Buxton and some colleagues - NTUK Comedy Night
Join us at the Union Chapel, London on Thursday 24th November for the latest comedy night to celebrate 40 years of NTUK
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We know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
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