Working For The NF Community and Helping to Protect and Save The NHS
26 March 2020

Nerve Tumours UK is fully dedicated to the health and well-being of our NF community. We work very closely with the NHS, funding posts based within NHS Foundations, therefore sharing the work and helping to carry the financial burden. Our nurses in the hospitals around the country are carrying on as best with business as usual, supporting those with NF, their families & carers.
But now we need your help too. To keep our service intact, and to move forward when this crisis is over, we need your support now, more than ever.
We have been trying to think of inventive ways to fundraise whilst stuck indoors, so why not join our "Big House Challenge!"
There is always somewhere that is in need of some spring cleaning....a room, cupboard, old coats, old bags, etc. You are bound to find some loose change...so why not donate it to Nerve Tumours UK, on the link below!
As the saying goes, "Every little helps!" Help us to continue helping you, our community.
Please follow all guidelines, take care and stay safe!
Karen Cockburn
Charity Director
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The Scottish Parliament Rare Disease Day Online Reception 15/03/2023
NTUK attended the Scottish Parliament Rare Disease Day online reception
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Dan and Derry will be taking on the London Marathon in support of Nerve Tumours UK
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Ragbir’s London Marathon
Ragbir is the Paediatric Lead for NF1 in Leeds and is running the London Marathon
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Rare Disease Day 2023
NTUK joined in with Rare Disease Day 2023, helping raise awareness of how better coordination of care can improve lives.
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Ashley’s NF1 story
Ashley loves red pandas, he's a 32 year old IT Specialist and has NF1. He is running a half marathon to raise NF awareness
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Guy’s & St.Thomas’s Monthly Care Awards
NF paediatric nursing team, Mandy and Katrina win the Guy’s and St Thomas’ Hospital November CARE Award 2022
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Cost of Living Crisis - Initiative
NTUK have co-signed an open letter to the Chancellor of the Exchequer on the cost of living
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Living with NF1: psychological impact & experiences
Research: Understanding the reality of the NF1 journey from diagnosis to daily life, and the emotional impact it has
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