Tom GK in Lockdown
22 May 2020
Hi, I'm Tom. I am a freelance journalist, comedian and proud custodian of literally dozens of non-cancerous tumours. I'm 33 and live in Brixton and, well, there's really very little more to say.
So now the cat is out of the bag. Now everyone knows what I've known ever since I was diagnosed with NF2 eight years ago: our doctors and nurses are AMAZING. It might have looked weird at the time but maybe I should have been spending my Thursday evenings clapping outside since my very first MRI scan. All by myself. Sorry about that, guys.
The lockdown has been a funny old thing, really. In some ways it has been frustrating (of course), as life has been paused and plans have been binned. I think for someone who can struggle not to have my life dictated by illness, and particularly treasures the times that going out is easy, this has been frustrating. Yet it's also been a brilliant opportunity to - cliche alert - really learn to love the small things in life. Whether it's actually speaking to that friend who you haven't spoken with since 2013, enjoying the slow arrival of spring or mastering the art of sourdough bread. These are things that transcend worries about jobs and money and careers and having the worst disease ever.
Having NF2 can be a lonely business and it can be hard to do what we really should be doing: living everyday for the moment.
![](/images/common/WNF2Day2_-_Tom_1_1024x768.jpg)
I think it's something that the "Cancer People" (I'm determined to turn this into a rivalry) do better than us with their bucket lists and things, to be honest. But now there are 60-odd million people in Britain who have all learned how precious and fragile life is, all at the same time. Maybe now we can all learn to live for the present a little more. Going back to my "Cancer vs NF2" rivalry idea, I've even come up with a slogan: "Cancer might be annoying but NF2 really gets on your nerves". I think the whole idea really has promise.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/durham-researchPage-Preview-800-x-500-px_800_600_s_c1.png)
New research into non-discrimination law
Durham University is looking for participants who look different due to their health complications. such as NF.
Read More![](https://nervetumours.org.uk/images/made/images/common/MichaelFry2_800_600_s_c1.png)
Letter from our new Chair
A letter detailing the vision of our new chair, and the future of the charity.
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK-logo_800x500px_800_600_s_c1.gif)
Launch of Nerve Tumours UK
Following a major strategic review, the Neuro Foundation charity is now known as Nerve Tumours UK.
Read More![](https://nervetumours.org.uk/images/made/images/common/shruti-garg_800_600_s_c1.jpg)
NF1 research award first for UK consultant
Dr Shruti Garg is the first non-US resident to receive NF1 $555,000 research award.
Read More![](https://nervetumours.org.uk/images/made/images/common/PoppyPage-Preview-800-x-500-px_800_600_s_c1.png)
Polly’s Story (as told by Mum Emily)
"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all"
Read More![](https://nervetumours.org.uk/images/made/images/common/eden-baby_800_600_s_c1.jpg)
EDEN Study Progress Report
The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.
Read More![](https://nervetumours.org.uk/images/made/images/common/EllaPage-Preview-800-x-500-px_800_600_s_c1.png)
Ella’s story
Have a read of Ella's story here. An uphill battle which we know she will turn around!
Read More![](https://nervetumours.org.uk/images/made/images/common/Grace-colourPage-Preview-800-x-500-px_800_600_s_c1.png)
Grace’s Story
Have a read of Grace's story and she overcame her insecurites surrounding her NF
Read More![](https://nervetumours.org.uk/images/made/images/common/Helpful_Charities_800x500_preview_800_600_s_c1.jpg)
Helpful Charities
Find some of the other helpful charities that may be able to support you here
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