Tom GK in Lockdown
22 May 2020
Hi, I'm Tom. I am a freelance journalist, comedian and proud custodian of literally dozens of non-cancerous tumours. I'm 33 and live in Brixton and, well, there's really very little more to say.
So now the cat is out of the bag. Now everyone knows what I've known ever since I was diagnosed with NF2 eight years ago: our doctors and nurses are AMAZING. It might have looked weird at the time but maybe I should have been spending my Thursday evenings clapping outside since my very first MRI scan. All by myself. Sorry about that, guys.
The lockdown has been a funny old thing, really. In some ways it has been frustrating (of course), as life has been paused and plans have been binned. I think for someone who can struggle not to have my life dictated by illness, and particularly treasures the times that going out is easy, this has been frustrating. Yet it's also been a brilliant opportunity to - cliche alert - really learn to love the small things in life. Whether it's actually speaking to that friend who you haven't spoken with since 2013, enjoying the slow arrival of spring or mastering the art of sourdough bread. These are things that transcend worries about jobs and money and careers and having the worst disease ever.
Having NF2 can be a lonely business and it can be hard to do what we really should be doing: living everyday for the moment.
![](/images/common/WNF2Day2_-_Tom_1_1024x768.jpg)
I think it's something that the "Cancer People" (I'm determined to turn this into a rivalry) do better than us with their bucket lists and things, to be honest. But now there are 60-odd million people in Britain who have all learned how precious and fragile life is, all at the same time. Maybe now we can all learn to live for the present a little more. Going back to my "Cancer vs NF2" rivalry idea, I've even come up with a slogan: "Cancer might be annoying but NF2 really gets on your nerves". I think the whole idea really has promise.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Andrew-Leak-MarathonPage-Preview-800-x-500-px_800_600_s_c1.png)
Andrew Leak is set to Complete 10 London Marathons!
Andrew Leak is about to complete his mission of running 10 London Marathon's! Find his press release here
Read More![](https://nervetumours.org.uk/images/made/images/common/Gemma-Barnes-Page-Preview-800-x-500-px_800_600_s_c1.png)
Meet Gemma
Gemma Barnish has NF2 and has recently gotten married, find out more about her intriguing life here:
Read More![](https://nervetumours.org.uk/images/made/images/common/KIDZ-ADULTZPage-Preview-800-x-500-px_800_600_s_c1.png)
Kidz to Adultz Exhibitions
Kidz to Adultz offer a number of free exhibitions across the year to offer adivce and information on living with a disability
Read More![](https://nervetumours.org.uk/images/made/images/common/CARPage-Preview-800-x-500-px_800_600_s_c1.png)
Centre for Appearance Research at UWE want you to help test online support for people with Nerve Tumours
Centre for Appearance Research are looking for people with Nerve Tumours to test their new online support
Read More![](https://nervetumours.org.uk/images/made/images/common/support-specialPage-Preview-800-x-500-px_800_600_s_c1.png)
Support Specialists Challenges and Ambitions
Read more on both Rachel and Carolyn's views on their ambitions and challenges faced as Support Specialists
Read More![](https://nervetumours.org.uk/images/made/images/common/Runderpants-2019Page-Preview-800-x-500-px_800_600_s_c1.png)
Runderpants Bangor 2019
Have a read about the unqiue but extremely successful event that was Runderpants Bangor 2019
Read More![](https://nervetumours.org.uk/images/made/images/common/FEI-USEPage-Preview-800-x-500-px_800_600_s_c1.png)
Nerve Tumours UK joins up with Face Equality International’s Alliance
We have joined Face Equality International Alliance in an attempt to end discrimination to those with facial differences
Read More![](https://nervetumours.org.uk/images/made/images/common/Bronte-website-headerPage-Preview-800-x-500-px_800_600_s_c1.png)
Bronte’s Story
Have a read of Bronte's story about how she continues to enjoy living her incredibly adventorous and ambitous life
Read More